OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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3,376 pages
News and meetings
HHS Secretary Alex Azar Touts White House Efforts to Fight Sickle Cell Disease
Spotlight
Videos and visuals
Patient Perspective: Childhood Experiences of Sickle Cell
QUALITY OF LIFE · Videos · Children · Feelings and Experiences
Videos and visuals
Patient Perspective: Uncompassionate Care and Suspicion
QUALITY OF LIFE · Videos · Feelings and Experiences
Videos and visuals
Sickle Cell Disease and Marrow/Stem Cell Donation
Videos · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation
Videos and visuals
Sickle Cell Disease Coalition (SCDC)
Videos · disease awareness/support · HealthCare Issues/Services · Outcomes
Education resources
Caregivers and Sickle Cell Disease
Patient Education · CAREGIVER SUPPORT · Caregiver · disease awareness/support
Education resources
Clinical and Genetic Predictors of Priapism in Sickle Cell Disease: Results From the Recipient Epidemiology and Donor Evaluation Study III Brazil Cohort Study
Scientific Articles · Epidemiology · Priapism
Videos and visuals
Patient Perspective: The Journey of Pain in Sickle Cell Disease
QUALITY OF LIFE · Videos · Feelings and Experiences · Vaso-occlusive Crisis/Pain Crisis
Education resources
Prevalence of Enuresis and its Impact in Quality of Life of Patients With Sickle Cell Disease
Scientific Articles · QUALITY OF LIFE · Enuresis/Bedwetting · Living with SCD/Quality of Life
Videos and visuals
Sickle Cell Disease: Why Is It Hard to Talk About Our Pain?
QUALITY OF LIFE · Videos · disease awareness/support · patient advocacy · Vaso-occlusive Crisis/Pain Crisis
Videos and visuals
Sickle Cell Patient Finds a Better way of Living Through Apheresis
QUALITY OF LIFE · Videos · courage and inspiration · disease awareness/support