OneSCDvoice archive

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1,152 pages from 2017

Videos and visualsAugust 31, 2017
A Child Prodigy, a Painful Disease, and a Life-Changing Treatment
TREATMENTS · Videos · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disability · Disease Management · Feelings and Experiences · Living with SCD/Quality of Life · Nonpharmacologic Therapy · Pain · Stem Cell Therapy
Videos and visualsAugust 31, 2017
Conquer SCD: A Call to Action Video
Videos · disease awareness/support · Resources/Patient Support
Videos and visualsAugust 31, 2017
Finding the Right Doctor
Videos · Feelings and Experiences · Finding the right doctor · HealthCare Issues/Services · Healthcare/Research · Living with SCD/Quality of Life
Videos and visualsAugust 31, 2017
How Sickle Cell Affects the Body
QUALITY OF LIFE · Videos · Coping · Living with SCD/Quality of Life
Videos and visualsAugust 31, 2017
Lia - A 2014 Short Film
QUALITY OF LIFE · Videos · Caregiver · Feelings and Experiences · Isolation · Living with SCD/Quality of Life · Pain
Videos and visualsAugust 31, 2017
Sickle Cell Anemia Explanation
Videos · Disease Management · Investigational Therapy/Future Therapy
Videos and visualsAugust 31, 2017
T-Boz on her Sickle Cell Diagnosis
Videos · disease awareness/support · Resources/Patient Support
Videos and visualsAugust 31, 2017
T-Boz: How Sickle Cell Impacts Her Career
QUALITY OF LIFE · Videos · Daily Care/Activities/coping · Diet · Lifestyle · Living with SCD/Quality of Life
Videos and visualsAugust 31, 2017
TBoz on Living with Sickle Cell
QUALITY OF LIFE · Videos · Caregiver · Living with SCD/Quality of Life · Psychosocial · Relationships
Videos and visualsAugust 31, 2017
Using CRISPR Cas9 to cure sickle cell disease
Videos · CRISPR · Disease Management · Gene Editing · Investigational Gene Therapy · Investigational Therapy/Future Therapy
Community storiesAugust 30, 2017
CAMEROON: Let’s Talk about Sickle Cell Disease
Patient Stories · Coping · Living with SCD/Quality of Life
Community storiesAugust 30, 2017
Crux of the matter with Elsie: Sexual Disposition of Sickle Cell Warriors
Community Interviews · Lifestyle · Living with SCD/Quality of Life · Sexual Health