OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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1,152 pages from 2017
Videos and visuals
Sickle Cell Disease, Hydroxyurea: What You Should Know
infographics/slides · Disease Management · Hydroxyurea/Hydria/Droxia · Pharmacotherapy/Drug Therapy
Videos and visuals
Sickle Cell Disease: Tips for Healthy Living
infographics/slides · QUALITY OF LIFE · Living with SCD/Quality of Life
Videos and visuals
Sickle Cell, Racism, and the Armor of Radical Self Love
QUALITY OF LIFE · Videos · Bullying · Burden · Feelings and Experiences · Financial · Living with SCD/Quality of Life · mistrust · Psychosocial · Stigma
People
Sohail Rana, MD
Healthcare Providers · Healthcare/Research · Hematology · Pediatrics/Child Care
Videos and visuals
St Jude Patient Story: Bryce
QUALITY OF LIFE · Videos · Adherence · Health Maintenance · Living with SCD/Quality of Life
Videos and visuals
Still Standing Documentary
QUALITY OF LIFE · Videos · Living with SCD/Quality of Life
Videos and visuals
The vibrant, subversive art of 17-year-old Panteha Abareshi
Videos · Living with SCD/Quality of Life
Videos and visuals
Understanding the Impact of Sickle Cell Disease
infographics/slides · disease awareness/support · Resources/Patient Support
Videos and visuals
What is a Bone Marrow Transplant?
Videos · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Investigational Therapy/Future Therapy · Nonpharmacologic Therapy · Stem Cell Therapy
Videos and visuals
What's in your genes?
Videos · disease awareness/support · Resources/Patient Support
Videos and visuals
5 Tips to Prevent a Crisis
QUALITY OF LIFE · Videos · Living with SCD/Quality of Life