OneSCDvoice archive
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519 pages from 2018
Education resources
Phase 3 study of L-Glutamine in sickle cell disease: Analyses of time to first and second crisis and average cumulative recurrent events
Abstracts & Posters · Clinical Trial Studies · Clinical Trials · Disease Management · L-Glutamine/Endari · Pharmacotherapy/Drug Therapy · phase III
Education resources
Prevention of acute chest syndrome by implementing a standardized process to improve incentive spirometry use in hospitalized patients with sickle cell disease
Abstracts & Posters · Acute Chest Syndrome · Complications/Clinical Manifestations · Disease Management · Incentive Spirometer · Nonpharmacologic Therapy · Sickle Cell Crisis
Education resources
Provider Perspectives of Necessary Factors in Sickle Cell Disease Health Care Transition: Results from an Online Survey
Abstracts & Posters · HealthCare Issues/Services · Healthcare/Research · Patient Transitions
Education resources
The Cadre (Coeur Artères et Drépanocytose) study- heart arteries and sickle cell disease
Abstracts & Posters · Cardiovascular Manifestations · Complications/Clinical Manifestations
Education resources
A survey of sickle cell patients transitioned to adult care from Texas children’s hematology center between January 1999 and January 2014
Abstracts & Posters · HealthCare Issues/Services · Healthcare/Research · Patient Transitions
People
Beatrice Gee, M.D., FAAP
Healthcare Providers · Healthcare/Research · Hematology · Pediatrics/Child Care
Education resources
Characteristics of a Chronic Pain Phenotype in Adults with Sickle Cell Disease
Abstracts & Posters · Complications/Clinical Manifestations · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
Education resources
Fever management practices among sickle cell disease programs in low and middle-income countries
Abstracts & Posters · Antibiotics · Complications/Clinical Manifestations · Disease Management · Infections · Pharmacotherapy/Drug Therapy · Sickle Cell Crisis
People
Jerlym S. Porter, PhD, MPH
Researchers · Healthcare/Research · Psychiatry/Psychology
Jerlym S. Porter is an Associate Member of Psychology in St. Jude Children’s Research Hospital. Her research interest is issues related to the transition process from pediatric…
Education resources
Patient Reported Outcomes and Adherence to Hydroxyurea in Adolescents and Young Adults With Sickle Cell Disease: A Feasibility Study
Abstracts & Posters · Adherence · Disease Management · Health Maintenance · Hydroxyurea/Hydria/Droxia · Living with SCD/Quality of Life · Pharmacotherapy/Drug Therapy