OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
Find archive content
460 pages from 2019
Education resources
Pediatric to Adult Transition in Sickle Cell Disease: Survey Results From Young Adult Patients
Scientific Articles · Adolescent/Young Adult Transition · Pediatrics/Child Care
Education resources
Sickle Cell Trait and Risk of Cognitive Impairment in African-Americans: The Regards Cohort
Scientific Articles · Neuropsychological/Cognitive Impairment · Sickle Cell Trait
Education resources
Keys to Recruiting and Retaining Seriously Ill African Americans With Sickle Cell Disease in Longitudinal Studies: Respectful Engagement and Persistence
Scientific Articles · Chronic Pain
News and meetings
2019 Cure Sickle Cell Initiative Annual Forum: Accelerating Scientific Priorities
Happenings
Education resources
A Validated Measure of Adherence to Antibiotic Prophylaxis in Children With Sickle Cell Disease
Scientific Articles · Antibiotics · Penicillin Prophylaxis
Education resources
Nitric Oxide, Phosphodiesterase Inhibitors and Soluble Guanylate Cyclase Stimulators as Candidate Treatments for Sickle Cell Disease
Scientific Articles · Nitric Oxide · Vaso-occlusive Crisis/Pain Crisis
News and meetings
Sickle Cell Disease Stakeholder Engagement Workgroup—Strategies to Improve Sickle Cell Disease Primary Care
Happenings
Videos and visuals
4 Transition Stages of Sickle Cell Disease and Tips for Each Stage
infographics/slides · QUALITY OF LIFE · Adolescent/Young Adult Transition · disease awareness/support · Patient Transitions · Teen/Teenager · Young Adult
News and meetings
10th Year Anniversary Celebration by The Sickle Cell Association of New Jersey
Happenings
Education resources
Changing the Conversation for Sickle Cell Disease and Reshaping its Future
Scientific Articles · disease awareness/support · Educational Support
Education resources
A Guide to Living With Sickle Cell Disease: Define Yourself, Define Your Life
sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Education · QUALITY OF LIFE · disease awareness/support · Living with SCD/Quality of Life · Sickle Cell Disease/Sickle Cell Anemia
Education resources
Accelerating the Science of SCD Therapies—Is a Cure Possible?
Scientific Articles · Investigational Therapy/Future Therapy