OneSCDvoice archive

News and meetingsJune 10, 2020

Fear, Anger, SCD and #BLACKLIVESMATTER

Education resourcesJune 6, 2020

COVID-19 and Sickle Cell Disease: Frequently Asked Questions

Patient Education · COVID-19

Education resourcesJune 6, 2020

COVID-19 Resources - American Society of Hematology

Patient Education · COVID-19

Community storiesJune 6, 2020

COVID-19 Update 7: Managing Patients With SCD During COVID-19 Crisis, With Drs. Michaelis & Osunkwo

Community Interviews · COVID-19

Education resourcesJune 6, 2020

Improving the Quality of Care for Adolescents and Adults With Sickle Cell Disease—It’s a Long Road

Scientific Articles · QUALITY OF LIFE · Adolescent/Young Adult Transition · disease awareness/support · Living with SCD/Quality of Life

News and meetingsJune 6, 2020

In Support of Rare Disease Patients Impacted by COVID-19, NORD Launches Premium and Limited Medical Relief Program

Spotlight

Education resourcesJune 6, 2020

Mechanisms of Pain in Sickle Cell Disease

Scientific Articles · Pain Relief/Pain Crisis · Vaso-occlusive Crisis/Pain Crisis

Education resourcesJune 6, 2020

Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care

Scientific Articles · QUALITY OF LIFE · Adolescent/Young Adult Transition · disease awareness/support · HealthCare Issues/Services · Living with SCD/Quality of Life

Education resourcesJune 6, 2020

Racism and Health-Related Quality of Life in Pediatric Sickle Cell Disease: Roles of Depression and Support

Scientific Articles · QUALITY OF LIFE · Anxiety · Depression/Mental Illness · Discrimination · Racism

Education resourcesJune 6, 2020

Self‐Management Recommendations for Sickle Cell Disease: A Content Analysis of Websites

Abstracts & Posters · Coping · Daily Care/Activities/coping · Educational Support

Education resourcesJune 6, 2020

Sleep Disturbance in Adults With Sickle Cell Disease: Relationships With Executive and Psychological Functioning

Scientific Articles · Coping · Neuropsychological/Cognitive Impairment · Sleep Disorders

News and meetingsJune 4, 2020

Celebratory Scholarship Virtual Gala - Michelle’s House (SCDAA SC)

Happenings