OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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615 pages from 2020
Education resources
Adverse Pregnancy Outcomes in Women With Sickle Cell Trait
Scientific Articles · QUALITY OF LIFE · Pregnancy Complications/Neonatal complications · Sickle Cell Trait/HbAS
News and meetings
CDC Expands SCD Data Collection Program to 7 More US States in Effort to Improve Services
Spotlight
Videos and visuals
Dante's Journey: Living With Sickle Cell
QUALITY OF LIFE · Videos · Coping · Feelings and Experiences
Community stories
Don’t Be Shy About Asking to Remain in the Hospital
Patient Stories · Emergency Departments/Hospitalizations
Education resources
Estimated Life Expectancy and Income of Patients With Sickle Cell Disease Compared With Those Without Sickle Cell Disease
Scientific Articles · QUALITY OF LIFE · Life Expectancy
News and meetings
FDA Awards $2M to Phase 2 Trial of Vitamin D for Reducing Risk of SCD Respiratory Complications
Clinical Trials and Research
News and meetings
HHS Secretary Alex Azar Touts White House Efforts to Fight Sickle Cell Disease
Spotlight
News and meetings
NIH Launches new Collaboration to Develop Gene-Based Cures for Sickle Cell Disease and HIV on Global Scale
Spotlight
Videos and visuals
Patient Perspective: Childhood Experiences of Sickle Cell
QUALITY OF LIFE · Videos · Children · Feelings and Experiences
Videos and visuals
Patient Perspective: Uncompassionate Care and Suspicion
QUALITY OF LIFE · Videos · Feelings and Experiences
Videos and visuals
Sickle Cell Disease and Marrow/Stem Cell Donation
Videos · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation
Videos and visuals
Sickle Cell Disease Coalition (SCDC)
Videos · disease awareness/support · HealthCare Issues/Services · Outcomes