OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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1,152 pages from 2017
Education resources
Prostacyclin-analog therapy in sickle cell pulmonary hypertension
Scientific Articles · Complications/Clinical Manifestations · Pulmonary Complications · Pulmonary Hypertension
Education resources
Caregiver Perspectives of Stigma Associated With Sickle Cell Disease in Adolescents
Scientific Articles · CAREGIVER SUPPORT
Education resources
What You Should Know About Sickle Cell Disease and Pregnancy
Patient Education · QUALITY OF LIFE · Definitions · Disease Basics · Living with SCD/Quality of Life · Pregnancy · Sickle Cell Disease/Sickle Cell Anemia
News and meetings
‘Every time it’s a battle’: In excruciating pain, sickle cell patients are shunted aside
Spotlight
Social and media
@sicklecell101
twitter · disease awareness/support · patient advocacy · Resources/Patient Support
Community stories
Sickle Cell Patients Endure Discrimination, Poor Care And Shortened Lives
Patient Stories · Caregiver · Discrimination · Feelings and Experiences · Grief · HealthCare Issues/Services · Healthcare/Research · Inadequate/Inappropriate Services · Life Expectancy · Living with SCD/Quality of Life
People
Wanda Borders
Community Advocates · disease awareness/support · patient advocacy · Resources/Patient Support