OneSCDvoice archive
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615 pages from 2020
Gene therapy articles
What Should Patients Know About Current Gene Therapy Treatments?
Gene Therapy and Sickle Cell Disease
Gene therapy articles
When Will Gene Therapy Be Available to More Patients?
Gene Therapy and Sickle Cell Disease
Gene therapy articles
Where Can I Find Information on Gene Therapy Clinical Studies and Trials?
Gene Therapy Basics
Gene therapy articles
Who Is Working on Gene Therapy?
Gene Therapy Basics
Education resources
Intentional and Unintentional Nonadherence to Hydroxyurea Among People With Sickle Cell Disease: A Qualitative Study
Scientific Articles · Health Maintenance · Hydroxyurea · Living with SCD/Quality of Life
Education resources
Tricuspid Regurgitant Jet Velocity and Myocardial Tissue Doppler Parameters Predict Mortality in a Cohort of Patients With Sickle Cell Disease Spanning from Pediatric to Adult Age Groups – Revisiting This Controversial Concept After Sixteen Years of Addit
Scientific Articles · Cardiovascular Manifestations · Complications/Clinical Manifestations · Mortality/Morbidity · Other Complications/Conditions
Education resources
Very Low Incidence of Clostridioides Difficile Infection in Pediatric Sickle Cell Disease Patients
Scientific Articles · Complications/Clinical Manifestations · Other Complications/Conditions
Education resources
A Multiyear Cross-Sectional Study of Guideline Adherence for the Timeliness of Opioid Administration in Children With Sickle Cell Pain Crisis
Scientific Articles · Opioids · Vaso-occlusive Crisis/Pain Crisis
Education resources
Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action
Reference Materials · Epidemiology · patient advocacy
Education resources
Association of Antibiotic Choice With Hospital Length of Stay and Risk Factors for Readmission in Patients With Sickle Cell Disease and Acute Chest Syndrome: An Observational Cohort Study
Scientific Articles · Acute Chest Syndrome · Antibiotics
Education resources
Emergency Department Utilization for Patients Living With Sickle Cell Disease: Psychosocial Predictors of Health Care Behaviors
Scientific Articles · Emergency Departments/Hospitalizations
Videos and visuals
Improving the Lives of Americans With Sickle Cell Disease Roundtable
Videos · disease awareness/support