OneSCDvoice archive
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519 pages from 2018
Education resources
Beliefs about hydroxyurea in youth with sickle cell disease
Scientific Articles · Adolescent/Young Adult Transition · Hydroxyurea/Hydria/Droxia
Education resources
Implementation of the NCAA sickle cell trait screening policy: A survey of athletic staff and student-athletes
Scientific Articles · College Athletes/NCAA
Education resources
Transition to adult care in sickle cell disease: A longitudinal study of clinical characteristics and disease severity
Scientific Articles · Adolescent/Young Adult Transition · Teen/Teenager · Transition Program
Community stories
Dating With Sickle Cell Can Be a Psychologically Damaging Affair
Patient Stories · QUALITY OF LIFE · dating · Romantic relationship
Community stories
Our Healthcare System Abandons Adult Sickle Cell Patients
sickle cell · sickle · cell · Patient Stories · Adolescent/Young Adult Transition · Emergency Departments/Hospitalizations · Finding the right doctor · HealthCare Issues/Services · Inadequate/Inappropriate Services · Patient Transitions · Teen/Teenager · Transition Program
Education resources
Results from Part A of the Hemoglobin Oxygen Affinity Modulation to Inhibit HbS Polymerization (HOPE) Trial (GBT440-031), a Placebo-Controlled Randomized Study Evaluating Voxelotor (GBT440) in Adults and Adolescents with Sickle Cell Disease
Abstracts & Posters · Hemolytic Anemia/Chronic Anemia · Voxelotor/GBT440
Education resources
A Five Fold Decrease in Admissions for Uncomplicated Vaso-Occlusive Crisis and Other Benefits from Care in Infusion Clinics: Results from the Escaped Trial
Abstracts & Posters · Vaso-occlusive Crisis/Pain Crisis
Education resources
Assessing the safety and efficacy of converting adults with sickle cell disease from full agonist opioids to buprenorphine
Abstracts & Posters · Buprenorphine · Drug Seeking Behavior
Education resources
Coagulation profile of sickle cell patients with leg ulcers
Abstracts & Posters · Leg ulcers
Education resources
Medical Marijuana for Sickle Cell Disease: Results of Two Years of Certification in an Adult Sickle Cell Center
Abstracts & Posters · Cannabinoids · Marijuana
Education resources
Sickle cell kidney disease
Patient Education · Acute Kidney Injury/Kidney Failure · Chronic Kidney Disease · Nephropathy/Kidney Damage
Education resources
Signs of Sickle Cell in Your Eyes
Patient Education · Eye Disorders/Ophthalmologic Manifestations