Community stories archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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118 pages in Community stories
Community stories
The Sickle - A Series
sickle cell disease · sickle cell · cell disease · sickle · cell · Community Interviews
Community stories
A Sickle Cell Caregiver’s Perspective on School and ER Visits
sickle cell · sickle · cell · Caregiver Stories
My daughter started school last year prior she had been homeschooled. She was in the 7th grade.
Community stories
New York Jets Running Back Tevin Coleman: Sickle-Cell Trait Threatened My Career. Now, I'm Raising A Daughter With Sickle-Cell Disease
Patient Stories
New York Jets running back Tevin Coleman didn't know that he carried sickle-cell disease until he was in college. That's when the rigorous training required for his…
Community stories
Honoring Global Warriors With Dr. Alex Kumar’s Untold Stories of SCD
sickle cell · sickle · cell · Patient Stories
These episodes feature voices from the global sickle cell community, speaking in their own words about issues that affect their lives. It’s the latest look at inspirational…
Community stories
Sickle Cell in the ED — Improving and Standardizing Care
sickle cell · sickle · cell · Community Interviews
September is National Sickle Cell Awareness Month, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease. Learn more about…
Community stories
Freda Lewis-Hall and TLC's "T-Boz" Discuss Sickle Cell Disease on The Doctors
Community Interviews
Community stories
Real Stories From People Living With Sickle Cell Disease: Mimi
sickle cell · sickle · cell · Patient Stories
“When I’m in that moment of pain in the emergency room, I can’t even think for myself. The pain is debilitating and they’re asking me questions like, ‘Are you sure you have sickle…
Community stories
Love + Sickle Cell Trait (Feat. Abisola and Seyi Shof): An Episode of the Sickle Cell Podcast
sickle cell · sickle · cell · Community Interviews
For the month of July, we are bringing awareness to sickle cell trait. Abibat Oshiobugie Suleiman is the host for today's episode.
Community stories
Supporting My Daughter, a Sickle Cell Warrior
Caregiver Stories
Community stories
Cheat Codes: A Sickle Cell Podcast: Legends of Sickle Cell - Dr. Michael DeBaun & Shamonica Wiggins
sickle cell · sickle · cell · Community Interviews
Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to…
Community stories
Baby Dream Comes True for Sickle Cell Patient
sickle cell · sickle · cell · Patient Stories · Pregnancy · Reproductive Health
June 19 celebrates World Sickle Cell Day. Sickle cell patient Daisha Dillon shares her pregnancy success story and how her UConn Health care teams have been with her every step of…
Community stories
Chasing the Crescent Moon: The Story of Dr. Frempong and Sickle Cell Disease
sickle cell · sickle · cell · Caregiver Stories