OneSCDvoice archive
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Places
Methodist Comprehensive Sickle Cell Center
sickle cell disease · sickle cell · cell disease · sickle · cell · Academic & Health Care Centers · Healthcare/Research · hospitals
Methodist Comprehensive Sickle Cell Center is a preventive outpatient clinic and dedicated emergency infusion unit specifically for sickle cell patients. It is for these patients…
Places
NYC Health + Hospitals
sickle cell · sickle · cell · Academic & Health Care Centers · Healthcare/Research · hospitals
NYC Health + Hospitals/Harlem are a designated Comprehensive Sickle Cell Center. The Center offers sensitive and caring pediatric services, prenatal diagnosis, transfusion, and…
News and meetings
Only 21% of Kids with ADHD and SCD Are Treated for Attention Deficit
Clinical Trials and Research
Places
Riley Hospital for Children at Indiana University Health
Academic & Health Care Centers · Healthcare/Research · hospitals
The health team at Riley at IU Health cares about the child, and they also care about future children who will be affected by cancer and blood diseases.
News and meetings
Small chips, big impact: MSU researcher studies cardiovascular, sickle cell disease
Clinical Trials and Research
Education resources
Adherence to hydroxyurea, health-related quality of life domains, and patients’ perceptions of sickle cell disease and hydroxyurea: a cross-sectional study in adolescents and young adults
Scientific Articles · QUALITY OF LIFE · Adherence · Health Maintenance · Hydroxyurea · Living with SCD/Quality of Life
Education resources
Culturally competent strategies for recruitment and retention of African American populations into clinical trials
Scientific Articles · Benefits of Trial Participation · Clinical Trials
Videos and visuals
Debbie's Story on BBC2 Hospital
Videos · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Nonpharmacologic Therapy · Stem Cell Therapy
Education resources
Eating Well With Sickle Cell
sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Education · QUALITY OF LIFE · Diet · Lifestyle · Living with SCD/Quality of Life
Education resources
Expanded newborn screening using new technologies
Patient Education · Definitions · Disease Basics · Sickle Cell Disease/Sickle Cell Anemia
Education resources
Expert answers on kids health
Patient Education · QUALITY OF LIFE · Daily Care/Activities/coping · Lifestyle · Living with SCD/Quality of Life
Education resources
Health Literacy and Disease-Specific Knowledge of Caregivers for Children With Sickle Cell Disease
Scientific Articles · CAREGIVER SUPPORT · Caregiver · Knowledge/Health literacy · Living with SCD/Quality of Life