OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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460 pages from 2019
News and meetings
In A 1st, Doctors In U.S. Use CRISPR Tool To Treat Patient With Genetic Disorder
Clinical Trials and Research
News and meetings
Randomized Trials Needed to Assess Benefits of Salmonella Vaccines in SCD Patients, Study Says
Clinical Trials and Research
Page
SDC Legislation from Sickle Cell Action Network
Education resources
Bone Marrow Transplantation for Adolescents and Young Adults With Sickle Cell Disease: Results of a Prospective Multicenter Pilot Study
Scientific Articles
Education resources
Acute Chest Syndrome in Children with Sickle Cell Disease
Scientific Articles · Acute Chest Syndrome · Children
Education resources
Age is a Predictor of a Small Decrease in Lung Function in Children With Sickle Cell Anemia
Scientific Articles
Videos and visuals
Attorney Terri Booker talks about life with Sickle Cell on World Sickle Cell Awareness Day
Videos · disease awareness/support
Education resources
Dyspareunia is Associated With Chronic Pain in Premenopausal Women With Sickle Cell Disease
Scientific Articles · Painful intercourse (dyspareunia) · Vaso-occlusive Crisis/Pain Crisis · Women · Women's Health
Education resources
For Youth & Young Adults: Questions to Ask Your Doctor About Transitioning to Adult Health Care
Patient Education
Education resources
Pain Management and the Opioid Epidemic: Balancing Societal and Individual Benefits and Risks of Prescription Opioid Use
Reference Materials
Education resources
Sickle Cell Trait: What You Need to Know
sickle cell · sickle · cell · Patient Education
Education resources
Sleep Problem Risk for Adolescents With Sickle Cell Disease: Sociodemographic, Physical, and Disease-Related Correlates
Scientific Articles · QUALITY OF LIFE · Daily Care/Activities/coping · Genotype/Inheritance Patterns · Living with SCD/Quality of Life · Sleep Disorders · Sociodemographic Factor