OneSCDvoice archive
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Community stories
A Sickle Cell Caregiver’s Perspective on School and ER Visits
sickle cell · sickle · cell · Caregiver Stories
My daughter started school last year prior she had been homeschooled. She was in the 7th grade.
News and meetings
Coverage for SCD Summit 2022
Happenings
The annual Coverage for SCD Summit provides a collaborative forum to discuss the changing landscape of healthcare coverage for sickle cell disease (SCD).
Education resources
Educator’s Guide to Sickle Cell Disease
sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Education
This publication will help educators assist children who have this condition to achieve their educational goals.
Education resources
Fact Sheet: Hemoglobin C Trait
Patient Education
About one out of every 40 African-Americans has hemoglobin C trait. This trait affects mostly African-Americans and people who have African ancestors.
Education resources
Fact Sheet: Hemoglobin E Trait
Patient Education
Hemoglobin E trait is very common in people whose ancestors came from Asia. It can also be found in people whose ancestors came from Africa, India, the Middle East, or the…