OneSCDvoice archive
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519 pages from 2018
News and meetings
Stigmatizing language in medical records affects patient care, study shows
Clinical Trials and Research
Education resources
A randomized controlled trial of home-based computerized working memory training for children with sickle cell disease
Abstracts & Posters · Cognitive Behavioural Therapy (CBT) · Neuropsychological/Cognitive Impairment · Working Memory Training
Education resources
Cognitive function, coping, and depressive symptoms in children and adolescents with sickle cell disease
Scientific Articles · QUALITY OF LIFE · Coping · Depression/Mental Illness · Neuropsychological/Cognitive Impairment
Education resources
Crizanlizumab 5.0 mg/kg increased the time to first on-treatment sickle cell pain crisis (SCPC) and the likelihood of not experiencing SCPC while on treatment: subgroup analyses of the phase 2 sustain study
Abstracts & Posters · Crizanlizumab/SelG1 · Vaso-occlusive Crisis/Pain Crisis
Education resources
Describing perceived racial bias among youth with sickle cell disease
Scientific Articles · QUALITY OF LIFE · Racism
Education resources
Guidelines for the use of hydroxycarbamide in children and adults with sickle cell disease: A British society for haematology guideline
Guides & Guidelines · Hydroxyurea/Hydria/Droxia
Education resources
Identifying factors underlying the decision for sickle cell carrier screening among African Americans within middle reproductive age
Scientific Articles · Sickle Cell Trait Testing
Education resources
Initial results from a cohort in a phase 2a study (GBT440-007) evaluating adolescents with sickle cell disease treated with multiple doses of voxelotor, a sickle hemoglobin polymerization inhibitor
Abstracts & Posters · Voxelotor/GBT440
Education resources
Opioid utilization by pregnant women with sickle cell disease and the risk of neonatal abstinence syndrome
Scientific Articles · Neonatal Withdrawal/Neonatal Abstinence Syndrome · Opioids
Education resources
Prevalence and characteristics of priapism in sickle cell disease
Scientific Articles · Priapism
Community stories
Screening for sickle cell and beta thalassaemia
Patient Stories · HbS beta thalassemia · Newborn Screening · Prenatal Screening · SCD Newborn Screening Program · Screening · Sickle Cell Trait Testing
Community stories
Sickle Cell Disease in the Emergency Department: Confronting Barriers to Care
sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Stories · Emergency Departments/Hospitalizations · Wait Time