OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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3,376 pages
People
Simone C. Eastman Uwan, MD
Healthcare Providers · counseling · disease awareness/support · Family Medicine · Motivational Speaker
Places
Wake Forest University Sickle Cell Center of Excellence
sickle cell disease · sickle cell · cell disease · sickle · cell · Academic & Health Care Centers · Healthcare/Research · Hematology · hospitals
The Wake Forest University Sickle Cell Center of Excellence was established, offering the only Comprehensive Sickle Cell Program in the region which continues to the present day…
Community stories
Beverly Ndukwu: A Patient Fighting Back With SCD
Patient Stories · QUALITY OF LIFE · Coping · disease awareness/support · patient advocacy · Relationships
News and meetings
Greenville program tries team approach to improve lifespan of sickle cell disease patients
Spotlight
Places
Foundation for Women & Girls with Blood Disorders
Community Organizations · disease awareness/support · Healthcare/Research · Hematology
Places
Hassenfeld Children’s Hospital at NYU Langone
sickle cell disease · sickle cell · cell disease · sickle · cell · Academic & Health Care Centers · Healthcare/Research · hospitals · Pediatrics/Child Care
Experts at the Hassenfeld Children’s Hospital provide family-centered, comprehensive care for children with sickle cell disease. A team of experts - including blood, brain, and…
People
Marina Jerebtsova, PhD
sickle cell disease · sickle cell · cell disease · sickle · cell · Researchers · HIV/AIDS · Nephropathy/Kidney Damage · Pathophysiology
Dr Jerebtsova’s research focuses on the effect of Sickle cell disease on the kidney and various biomarkers associated with it, chronic kidney disease in sickle cell anemia, and…
Education resources
Patient-reported experience measure in sickle cell disease
Scientific Articles · Feelings and Experiences · HealthCare Issues/Services · Surveillance