OneSCDvoice archive
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182 pages from 2022
News and meetings
Sickle Cell Summer Enrichment Camp: Piedmont Health Services and Sickle Cell Agency
Happenings
Piedmont Health Services and Sickle Cell Agency will sponsor its 38th Annual Sickle Cell Summer Enrichment Camp at Camp Carefree in Stokesdale, North Carolina. Our camp will be…
News and meetings
4th Global Congress on Sickle Cell Disease
Happenings
The Congress will bring together sickle cell diseases stakeholders from various sectors, including clinicians, scientists, patients, health policy makers and advocacy groups to…
Videos and visuals
How Does Sickle Cell Disease Affect Fertility and Reproductive Health?
Webinars · Lifestyle · Family Planning · Reproductive Health
News and meetings
Nobel Prize Spotlights Sickle Cell’s Disproportionate Impact on African Americans
People
Education resources
Access to Care for Individuals With Sickle Cell Anemia - SCDAA
community · Patient Education · Critical Care
Sickle cell disease (SCD) is a genetic blood disorder. It is progressive and causes life-threatening complications that require comprehensive healthcare to manage. After a…
News and meetings
COVID-19 Outcomes Among Individuals With Sickle Cell Disease by IASCNAPA - Webinar
Happenings
Explore how COVID-19 impacts individuals with sickle cell disease (SCD) compared to other those who do not have sickle cell disease and risk factors for severe COVID-19 illness…
Community content
Mental Health and Wellness Services for Persons Diagnosed With Sickle Cell Disease in California
sickle cell disease · sickle cell · cell disease · services & support · disease awareness/support · Sickle Cell Disease/Sickle Cell Anemia
Cayenne Wellness Center Launches Free Mental Health and Wellness Services for persons diagnosed with Sickle Cell Disease in California. Explore the types of mental health and…
News and meetings
SCDAA Partners With Phi Beta Sigma Fraternity
Business
The partnership will support the SCDAA and sickle cell community through raising funds, mobilizing blood and bone marrow drives and collaborating to educate the community about…
News and meetings
2023 Celebrating a Second Chance at Life Survivorship Symposium - Virtual
Happenings
Join the 2023 Survivorship Symposium for expert insights on managing post-transplant challenges. Register for exclusive access to inspiring live and recorded events and a…
News and meetings
8th Annual Leadership Summit and General Assembly of Patients, Caregivers & CBOs
Happenings
The Leadership Summit is the primary meeting of the Sickle Cell Community Consortium. Normally, every March all Consortium partners travel to Atlanta Georgia to participate in the…
News and meetings
The Empowered Caregivers Forum: A Support Resource for Parents / Caregivers of Warriors With Sickle Cell / Thalassemia
Happenings
Join Carla Lewis, CEO of Kids Conquering Sickle Cell Disease Foundation and Rae Blaylark, CEO of Sickle Cell Foundation of Minnesota for the Empowered Caregivers Forum. The forum…
People
Titilope Fasipe, MD, PhD
sickle cell disease · cell disease · Researchers
Dr. Titilope Fasipe’s goals are shaped by her desire to help children facing the hardships of a blood disorder. She is intrigued by the clinical challenges of non-malignant…