Understanding sickle cell disease
Information for people living with sickle cell disease, their families and the people caring for them. Each item says who published it, and whether you read it here or on the publisher's own site.
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The conversation we avoid: Telling children they have sickle cell disease
“When can I tell my child that they have sickle cell disease ?” As a physician living with the condition, this remains one of the most frequent questions I receive from parents…
Sickle Cell Disease
New study finds distinct molecular signatures in newborns with SCT
Newborns with sickle cell trait (SCT), meaning they carry a mutation in one copy of the HBB gene but do not have sickle cell disease (SCD), show abnormalities in certain…
Sickle Cell Disease
Understanding the impact of leg ulcers in sickle cell disease
Leg ulcers are one of the most distressing and disabling complications of sickle cell disease (SCD). These open wounds mostly affect patients with sickle cell anemia (HbSS)…
Sickle Cell Disease
Asthma seven times more likely in SCD children than in unaffected siblings
Children with sickle cell disease (SCD) are about seven times more likely to have asthma than their unaffected siblings, with odds increasing with age, according to a study in the…
Sickle Cell Disease
Asthma seven times more likely in SCD children than in unaffected siblings
Children with sickle cell disease (SCD) are about seven times more likely to have asthma than their unaffected siblings, with odds increasing with age, according to a study in the…
Sickle Cell Disease
Sickle cell patients shifting to adult care visit ER more often: US study
As they shift from pediatric to adult care, young adults with sickle cell disease (SCD) appear to visit the emergency room more often and be prescribed less hydroxyurea , a…
Sickle Cell Disease
Clinical presentation and outcomes of children hospitalized with sickle cell anemia at Gulu Regional Referral Hospital, Uganda: A retrospective cross-sectional study
Background Sickle cell anemia (SCA) is a significant public health challenge, particularly in sub-Saharan Africa, where 80% of affected individuals reside. This study aimed to…
ScienceDirect
Chronic pain means greater disability for young people with sickle cell: Study
Chronic pain among adolescents and young adults with sickle cell disease (SCD) is associated with more functional disability — meaning patients are less able to independently…
Sickle Cell Disease
Screening tool identifies developmental risks in young children with SCD: Study
A neurodevelopmental screening tool may identify toddlers and preschool children with sickle cell disease (SCD) who are at risk for long-term academic difficulties, a study shows…
Sickle Cell Disease
Born at UC Berkeley: a breakthrough in the treatment of sickle cell disease
A sickle is a crescent-shaped blade once used to harvest wheat. When red blood cells take on that same curved shape, it signals sickle cell disease –– an inherited condition that…
Berkeley News