Google
Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Health Care Disparities Among Adolescents and Adults With Sickle Cell Disease: A Community-Based Needs Assessment to Inform Intervention Strategies
source: Journal of Clinical Outcomes Management
year: 2020
authors: Marsha J. Treadwell, Eufemia Jacob, Danielle Hessler, Alex Francis Chen, Yumei Chen, Swapandeep Mushiana, Michael B. Potter, Elliott Vichinsky
summary/abstract:Objective:
Adolescents and adults with sickle cell disease (SCD) face pervasive disparities in health resources and outcomes. We explored barriers to and facilitators of care to identify opportunities to support implementation of evidence-based interventions aimed at improving care quality for patients with SCD.
Methods:
We engaged a representative sample of adolescents and adults with SCD (n = 58), health care providers (n = 51), and community stakeholders (health care administrators and community-based organization leads (n = 5) in Northern California in a community-based needs assessment. We conducted group interviews separately with participant groups to obtain in-depth perspectives. Adolescents and adults with SCD completed validated measures of pain interference, quality of care, self-efficacy, and barriers to care. Providers and community stakeholders completed surveys about barriers to SCD care.
Conclusion:
Strategies for improving access to compassionate, evidence-based quality care, as well as strategies for minimizing the burden of having SCD, are warranted for this medically complex population.
DOI: 10.12788/jcom.0019
read more
+myBinderRelated Content
-
HABIT, a Randomized Feasibility Trial to Increase Hydroxyurea Adherence, Suggests Improved Health Related Quality of...Objectives: To examine the effect of a...
-
The Green Family StoryAJ had his first sickle cell crisis at a...
-
Surprise of a lifetime: Devin McCourty gives away two Super Bowl LIII ticketsBrunel Etienne says one his childhood dr...
-
Feasibility of an internet-enabled tablet-based guided imagery for stress and pain reduction intervention in adults ...Pain of sickle cell disease (SCD) has bo...
-
Sickle Cell Emergency Room Care: From Patients to Providershttps://www.youtube.com/watch?time_conti...
-
Kyriako Damavoletes Talks About the Stigma of Sickle Cell DiseaseKyriako Damavoletes has HbS beta thalass...
-
School staff lacks knowledge about sickle cell disease, student survey findsStudents with sickle cell dise...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.