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Trusted Resources: News & Events
Latest announcements and gatherings
Sickle Cell Awareness 365 Transition Focus Group
Sickle Cell Awareness 365
Transition Focus Group
Saturday, May 20, 2023
Virtual Event, 1 pm–3 pm EST
Are you a parent of a Sickle Cell Warrior? Are you a Sickle Cell Warrior between the ages of 13–23? We want to hear from you on how we can help our young Warriors transition into adulthood.
This focus group is to understand the needs and wants of Warriors and their caregivers as they transition from pediatric care to not only the adult healthcare system but learning how to adult with Sickle Cell Disease as a whole. We are a unique group of people and cannot move in the ways that our peers can. We want younger Warriors to understand that it is entirely okay to dance to the beat of your own drum and embrace your uniqueness for the betterment of yourself.
You have a chance to win a $25 gift card for your participation.
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people & placesPaulette E. Forbes, MPH, MS, APNMs. Paulette E. Forbes serves as an inpa...
news & eventsA Teenager’s Breakthrough Gene Therapy for Sickle Cell DiseaseMeet Helen Obando, a shy 16-year-old who...
videos & visualsRoald Dahl’s Marvellous Children’s Charity “Everyone’s Business” campaignhttps://www.youtube.com/watch?v=VqdP3Sxa...
videos & visualsWorld Sickle Cell Day: Sisters Living With Sickle Cell, Hoping for a Curehttps://www.youtube.com/watch?v=y3Bg0RJv...
Community CenterAdulting is especially difficult for youth with special health care needsThere are approximately 4.3 million adol...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.