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New York Senate Bill 1839 and Assembly Bill 6430—Sickle Cell Disease Detection and Education Program
Hello Partners in Advocacy!
The Sickle Cell/Thalassemia Patients Network (SCTPN) on behalf of all of the other sickle cell disease (SCD) community organizations are circulating a letter to the Chairs of the Assembly and Senate Health Committees for support of the Sickle Cell Disease Education and Detection bill S1839.
The letter requests that the state leaders dedicate $750,000 to educating health professionals and the public about sickle cell trait and disease. It will also provide funding to community-based organizations in the Fiscal Year 2023-24 to expand public outreach and education efforts.
SCTPN are inviting organizations who care about rare and chronic diseases and improving the quality of life for those who are impacted to sign on to the letter linked below.
Organization and Individual names will be listed on the letter. Please email your organization logo to include with the letter.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.