Google
Trusted Resources: Community Center
Online groups, photo galleries and blogs
Prioritizing Sickle Cell Patients: A Chance to Mend Broken Ties
I’ve lived with sickle cell disease for 34 years now. Never have I imagined that a cure would be imminent, at least not within my lifetime. In fact, I remember days as an adolescent when my pediatric hematologist would tell me I’d be lucky to live long enough to experience college.
It’s an everyday struggle living with an illness that penetrates all areas of my body where blood flows. Unlike most children who live with sickle cell disease (SCD), my daily struggle didn’t include constant visits to the emergency room plagued by excruciating pain (although I’d experience a great deal of pain in adulthood). Instead, the pain came from my monthly blood transfusions, which became a routine therapy after a stroke, that ultimately devastated my veins.
+myBinderRelated Content
-
You’d never know this 2-year-old has sickle cell anemiaWhen you meet 2-year-old Evelyn Islam, t...
-
MARAC Advisory Statement: Monoclonal Antibodies Against SARS-CoV-2August 26, 2021 – The Sickle Cell Dis...
-
University of Pittsburgh School of MedicineThe University of Pittsburgh School of M...
-
Feasibility and acceptability of internet-delivered cognitive behavioral therapy for chronic pain in adolescents wit...Pain is a clinical hallmark of sickle ce...
-
Virtual reality as complementary pain therapy in hospitalized patients with sickle cell diseaseObjective: Due to incomplete management...
-
Global Blood Therapeutics Receives EMA PRIME Designation for GBT440 for the Treatment of Sickle Cell Disease (SCD)GBT440 is First Potential Treatment for ...
-
What is a Bone Marrow Transplant?https://www.youtube.com/watch?v=wrfT5wqH...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
