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You Belong Here. Embrace Your Sickle Cell
Let’s not just campaign for Sickle cell prevention; let’s be equally forceful in embracing the kids who are already here!
Some call it a disease; some compare it to Aids and cancer. In that, we are constantly telling sickle cell carriers that they’re dying or going to die soon, but they are not. Stop the culture of death around sickle cell! We raise them in guilt and fear. We make their condition a secret. We don’t want anyone knowing about it, except for a very small circle of people that we “trust”, because we feel guilty, ashamed, or scared.
news & eventsKNOWvember Webinar: A grandparent’s voice – Advocacy and support for chronic pain familiesWhile parents are often the prim...
news & eventsOpioid Abuse Backlash Could Hurt Sickle Cell Patients’ Medication Needs, Some FearWith drug overdoses now the leading caus...
education & researchHow to Prepare Your Family in Case COVID-19 Spreads in Your CommunityHere is what you can do to prepare your ...
news & eventsDr. Wayne A. I. Frederick launches ‘Run to Cure Sickle Cell’ campaignDr. Wayne A. I. Frederick today announce...
education & researchYouth sports safety statisticsThere were as many as 50 sports-relat...
Community CenterAdulting is especially difficult for youth with special health care needsThere are approximately 4.3 million adol...
news & eventsSickle cell cure is real, as this Kansas patient provesIntense pain. Fatigue. Repeated infectio...
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