OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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1,152 pages from 2017
Education resources
The Prevalence of Mood and Alcohol Related Disorders within the Adult Sickle Cell Disease Population and Their Impact on Healthcare Utilization
Abstracts & Posters · Alcohol · Depression/Mental Illness · Feelings and Experiences · Living with SCD/Quality of Life
Education resources
Use of Marijuana in Patients with Sickle Cell Disease Increased the Frequency of Hospitalization for Acute Painful Vaso-Occlusive Crises
Abstracts & Posters · Complications/Clinical Manifestations · Disease Management · Marijuana · Medicinal Plants/Phytomedicines · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
People
Diana Wells RN, MSW, MPH
sickle cell · sickle · cell · Patient Support Professionals · disease awareness/support · patient advocacy · Resources/Patient Support
Videos and visuals
A Pill a Day for Sickle Cell
QUALITY OF LIFE · Videos · Adherence · Health Maintenance · Hydroxyurea · Living with SCD/Quality of Life
Videos and visuals
Beyond the Data – Improving the Lives of People with Sickle Cell Disease
Videos · Resources/Patient Support
Videos and visuals
Cord Blood Transplants: A Sickle Cell Cure
Videos · Blood Transfusion · Cord Blood Transfusion · Disease Management · Living with SCD/Quality of Life · Nonpharmacologic Therapy
Videos and visuals
Crizanlizumab for the Prevention of Pain Crises in Sickle Cell Disease
Videos · Crizanlizumab/SelG1 · Disease Management · Investigational Therapy/Future Therapy
Videos and visuals
Defeating Sickle Cell Disease with Stem Cells + Gene Therapy: Stem Cells in Your Face
Videos · Disease Management · Investigational Gene Therapy · Investigational Stem Cell Therapy · Investigational Therapy/Future Therapy
Videos and visuals
Foods to Help with Sickle Cell
infographics/slides · QUALITY OF LIFE · Diet · Lifestyle · Living with SCD/Quality of Life
Videos and visuals
Get Screened for Sickle Cell Trait
infographics/slides · Disease Basics · Recommendations/Precautions · Screening
Videos and visuals
High ED Utilization and Perceptions of Opioid Addiction
Videos · HealthCare Issues/Services · Healthcare/Research