OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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1,152 pages from 2017
Education resources
When Your Child Has Sickle Cell Anemia
Patient Education · Definitions · Disease Basics · Sickle Cell Disease/Sickle Cell Anemia
Clinical trial resources
How Do I Decide if the Clinical Trial Is Right for Me?
Participating in Clinical Trials
Clinical trial resources
What Information Does the Trial Staff Share With Me?
Participating in Clinical Trials
Clinical trial resources
What Rights and Protections Do I Have as a Clinical Trial Participant?
Protecting Your Rights & Safety
Clinical trial resources
Who Monitors My Health and Safety During My Clinical Trial?
Protecting Your Rights & Safety
Clinical trial resources
Why Should I Participate in a Clinical Trial?
Participating in Clinical Trials
Social and media
@juliemakani
twitter · disease awareness/support · Healthcare/Research · Resources/Patient Support
Education resources
PH and Sickle Cell Disease
Patient Education · Complications/Clinical Manifestations · Pulmonary Complications · Pulmonary Hypertension
Social and media
Sickle International Family Coalition
facebook · disease awareness/support · Resources/Patient Support