OneSCDvoice archive
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519 pages from 2018
Education resources
Health-related quality of life at 1 Year in the drepagreffe trial comparing chronic transfusion to transplantation in children with sickle cell anemia and a history of abnormal cerebral velocities
Abstracts & Posters · Blood Transfusion · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Chronic Transfusion · Disease Management · Nonpharmacologic Therapy · Stem Cell Therapy
Education resources
Men with sickle cell disease show significant concerns over safety while being treated for vaso-occlusive crises: preliminary observations from the escaped trial
Abstracts & Posters · Complications/Clinical Manifestations · Emergency Departments/Hospitalizations · HealthCare Issues/Services · Healthcare/Research · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
Education resources
Outcome of severe vaso occlusive crisis in sickle cell disease adults admitted to referral centers in Africa and Europe. Preliminary results from the presev 2 study
Abstracts & Posters · Acute Chest Syndrome · Complications/Clinical Manifestations · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
Education resources
Pediatric to adult care co-location transitional model for youth with sickle cell disease
Scientific Articles · HealthCare Issues/Services · Healthcare/Research · Inadequate/Inappropriate Services · Patient Transitions
Education resources
Promising results at 1 year follow-up following familial haploidentical (FHI) T-cell depleted (TCD) with CD34 enrichment and T-cell (CD3) addback allogeneic stem cell transplantation in patients with high-risk sickle cell disease (SCD)
Abstracts & Posters · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · haploidentical · Nonpharmacologic Therapy · Stem Cell Therapy · Stem Cell Therapy Complications
Education resources
Stable engraftment with haploidentical peripheral blood stem cell transplantation in adult patients with sickle cell disease
Abstracts & Posters · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Disease Management · Nonpharmacologic Therapy · Stem Cell Therapy
Education resources
The first two years of life in sickle cell anemia infants: A results of a comprehensive longitudinal study
Abstracts & Posters · Clinical Trial Studies · Clinical Trials · Complications/Clinical Manifestations · Healthcare/Research · Pediatrics/Child Care
Education resources
Initial results from a cohort in a phase 2a study (GBT440-007) evaluating adolescents with sickle cell disease treated with multiple doses of GBT440, a HbS polymerization Inhibitor
Abstracts & Posters · Clinical Trial Studies · Clinical Trials · Disease Management · Investigational Therapy/Future Therapy · phase II
Education resources
Prevalence and correlates of growth failure in african patients with sickle cell disease: A multinational study
Abstracts & Posters · Complications/Clinical Manifestations · Growth Defects · Musculoskeletal Manifestations
Videos and visuals
14 Tips for Traveling with a Chronic Illness or Disability
QUALITY OF LIFE · Videos · Lifestyle · Living with SCD/Quality of Life · Travel
Videos and visuals
Khale'iya - Living with Sickle Cell Disease
QUALITY OF LIFE · Videos · Feelings and Experiences · Living with SCD/Quality of Life
Videos and visuals
Sickle cell and pregnancy (what you should know)
QUALITY OF LIFE · Videos · Living with SCD/Quality of Life · Pregnancy · Reproductive Health