OneSCDvoice archive
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460 pages from 2019
Community stories
Living With Sickle Cell Disease: One Person’s Story of Pain and Prejudice and Their Hopes for a Stem Cell Therapy
Patient Stories · QUALITY OF LIFE · Coping · Feelings and Experiences · Investigational Stem Cell Therapy · Pain
Education resources
Maternal Sickle Cell Disease and Twin Pregnancy: A Case Series and Review of the Literature
Scientific Articles · QUALITY OF LIFE · Pregnancy
Education resources
Pediatric Residents' Perceived Barriers to Opioid Use in Sickle Cell Disease Pain Management
Scientific Articles · Medical complications · Opioid Dependence/Addiction · Opioids · Pediatrics/Child Care
Education resources
Prevalence and Correlates of Growth Failure in Young African Patients With Sickle Cell Disease
Scientific Articles · QUALITY OF LIFE · Adolescent/Young Adult Transition · African-American/African · Growth Defects
Education resources
Qualifying for Social Security Disability With Sickle Cell Disease
Patient Education · Financial Assistance · Health Insurance/Medicaid Coverage
Education resources
Sensorineural Hearing Loss in Children With Sickle Cell Disease
Scientific Articles · QUALITY OF LIFE · Hearing disability · Pediatrics/Child Care · Sensorineural hearing loss
Education resources
Acute Vaso-Occlusive Pain is Temporally Associated With the Onset of Menstruation in Women With Sickle Cell Disease
Scientific Articles · Menstruation · Vaso-occlusive Crisis/Pain Crisis
Education resources
Association of Matched Sibling Donor Hematopoietic Stem Cell Transplantation With Transcranial Doppler Velocities in Children With Sickle Cell Anemia
Scientific Articles · Bone Marrow Transplant/Allogeneic hematopoietic stem cell transplantation · Transcranial Doppler Ultrasonography
News and meetings
ATS Releases Guidelines for Home Oxygen Therapy in Children With Sickle Cell Disease
Spotlight
News and meetings
Congo Delegation Visits Howard University to Bolster Collaborations on Sickle Cell Disease
Spotlight
Education resources
Contraceptive Methods and the Impact of Menstruation on Daily Functioning in Women With Sickle Cell Disease
Scientific Articles · QUALITY OF LIFE · Contraception · Daily Care/Activities/coping · Menstruation
Education resources
Endocrine and Metabolic Complications in Children and Adolescents With Sickle Cell Disease: An Italian Cohort Study
Scientific Articles · Adolescent/Young Adult Transition · endocrine manifestations · prognosis/prognostic factors