OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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3,376 pages
Education resources
Sickle Cell Trait and Risk of Cognitive Impairment in African Americans: The Reasons for Geographic and Racial Differences in Stroke (REGARDS) Cohort
Abstracts & Posters · African-American/African · Ancestry · Complications/Clinical Manifestations · Definitions · Disease Basics · Heterozygous · Neurological Complications · Neuropsychological/Cognitive Impairment · Risk Factors · Sickle Cell Disease/Sickle Cell Anemia · Sickle Cell Trait/HbAS
Education resources
Survival in Sickle Cell Disease: Data from a Well-Resourced, National Health System Setting
Abstracts & Posters · Complications/Clinical Manifestations · Mortality/Morbidity · Other Complications/Conditions
Education resources
TCD with Transfusions Changing to Hydroxyurea (TWiTCH): Hydroxyurea Therapy As an Alternative to Transfusions for Primary Stroke Prevention in Children with Sickle Cell Anemia
Abstracts & Posters · Blood Transfusion · Diagnosis · Disease Management · Hydroxyurea/Hydria/Droxia · Nonpharmacologic Therapy · Pharmacotherapy/Drug Therapy · Radiodiagnosis · Transcranial Doppler Ultrasonography
Education resources
The Affordable Care Act Improves Healthcare Access and Utilization Among Young Adults with Sickle Cell Disease
Abstracts & Posters · Financial · Health Insurance/Medicaid Coverage · HealthCare Issues/Services · Healthcare/Research · Living with SCD/Quality of Life
Education resources
The Prevalence of Mood and Alcohol Related Disorders within the Adult Sickle Cell Disease Population and Their Impact on Healthcare Utilization
Abstracts & Posters · Alcohol · Depression/Mental Illness · Feelings and Experiences · Living with SCD/Quality of Life
Education resources
Use of Marijuana in Patients with Sickle Cell Disease Increased the Frequency of Hospitalization for Acute Painful Vaso-Occlusive Crises
Abstracts & Posters · Complications/Clinical Manifestations · Disease Management · Marijuana · Medicinal Plants/Phytomedicines · Sickle Cell Crisis · Vaso-occlusive Crisis/Pain Crisis
People
Diana Wells RN, MSW, MPH
sickle cell · sickle · cell · Patient Support Professionals · disease awareness/support · patient advocacy · Resources/Patient Support
Videos and visuals
A Pill a Day for Sickle Cell
QUALITY OF LIFE · Videos · Adherence · Health Maintenance · Hydroxyurea · Living with SCD/Quality of Life
Videos and visuals
Beyond the Data – Improving the Lives of People with Sickle Cell Disease
Videos · Resources/Patient Support
Videos and visuals
Cord Blood Transplants: A Sickle Cell Cure
Videos · Blood Transfusion · Cord Blood Transfusion · Disease Management · Living with SCD/Quality of Life · Nonpharmacologic Therapy
Videos and visuals
Crizanlizumab for the Prevention of Pain Crises in Sickle Cell Disease
Videos · Crizanlizumab/SelG1 · Disease Management · Investigational Therapy/Future Therapy