OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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304 pages from 2021
News and meetings
International Association of Sickle Cell Nurses and Professional Associates (IASCNAPA) Scholarships
Spotlight
Gene therapy resources
links-gene-isotope 101243
News and meetings
Statement on NHLBI Decision to Pause the Pilot and Feasibility Study of Hematopoietic Stem Cell Gene Transfer for Sickle Cell Disease
Clinical Trials and Research
Community stories
My Story With Sickle Cell Disease - Cortney
sickle cell · sickle · cell · Patient Stories · QUALITY OF LIFE · Feelings and Experiences
Videos and visuals
Don't Let Sickle Cell Disease Limit You
infographics/slides · Hydroxyurea/Hydria/Droxia
Videos and visuals
COVID-19 Vaccines Update: FDA and CDC Leaders Address the Rare Disease Community
Webinars