OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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615 pages from 2020
Videos and visuals
Developing Hydroxyurea, the First FDA-Approved Therapy for Sickle Cell Disease
Videos · Hydroxyurea/Hydria/Droxia
News and meetings
Expert Opinion Hydroxyurea Could Prevent Strokes for People With Sickle Cell Disease in Lieu of Transfusions During COVID-19 Blood Supply Shortage
Clinical Trials and Research
News and meetings
SCD Patients Receiving Hydroxyurea in the U.S. Still Face Many Challenges
Spotlight
Education resources
7 Ways to Step Up Your Sleep Game
Patient Education · Educational Support · patient advocacy
Education resources
8 Tips to Support Students With Sickle Cell Disease
Patient Education · QUALITY OF LIFE · CAREGIVER SUPPORT · Educational Support · Intravenous Fluids/Oral Fluids/Hydration · patient advocacy · School
Education resources
Fighting Painful Misconceptions About Sickle Cell Disease in the ER
Patient Education · Emergency Departments/Hospitalizations · Myths and Misconceptions
Education resources
Regaining Control: Anxiety in Sickle Cell Disease
Scientific Articles · QUALITY OF LIFE · Anxiety
Education resources
Strategies to Avoid the Flu
Patient Education · Educational Support · Influenza · patient advocacy
Education resources
Who Cares for Adult Sickle Cell Patients?
Patient Education
News and meetings
The Brain + Executive Function in Sickle Cell Disease: Part 1- A Neuropsychology Perspective
Happenings
Education resources
Q & A Facts on Hydroxyurea for Children With Sickle Cell Disease
Patient Education · Hydroxyurea/Hydria/Droxia
Education resources
Greater Number of Perceived Barriers to Hydroxyurea Associated With Poorer Health-Related Quality of Life in Youth With Sickle Cell Disease
Scientific Articles · QUALITY OF LIFE · Adolescent/Young Adult Transition · Hydroxyurea/Hydria/Droxia