OneSCDvoice archive
Explore reporting, meetings, people, education, community stories and resources from the original OneSCDvoice website.
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460 pages from 2019
Education resources
Voxelotor in Adolescents and Adults With Sickle Cell Disease: Results of the Phase 3 Hope Trial
Abstracts & Posters · Voxelotor/GBT440
Education resources
Accommodation and Compliance: Sickle Cell Anemia
sickle cell disease · sickle cell · cell disease · sickle · cell · Patient Education · Accomodations
Videos and visuals
Advances in the Treatment of Sickle Cell Disease: L-Glutamine, Crizanlizumab & Gene Therapy
TREATMENTS · Webinars · Crizanlizumab/SelG1 · Gene Therapy · L-Glutamine/Endari
Education resources
An Integrative Review of Factors That Influence Reproductive Decisions in Women With Sickle Cell Disease
Scientific Articles · QUALITY OF LIFE · Reproductive Counseling · Reproductive Issues/Complications
Education resources
Barriers and Facilitators to Care for Individuals With Sickle Cell Disease in Central North Carolina: The Emergency Department Providers' Perspective
Scientific Articles · Emergency Departments/Hospitalizations · Health Maintenance
News and meetings
Cognitive Function may be Affected in Adults With Sickle Cell Disease, Study Suggests
Clinical Trials and Research
Videos and visuals
Could Gene Therapy Cure Sickle Cell Anemia?
Videos · Investigational Gene Therapy
Education resources
For Patients: Sickle Cell Trait
sickle cell · sickle · cell · Patient Education · Ancestry · Sickle Cell Trait/HbAS
Videos and visuals
Gainey Raises Awareness About Sickle Cell, Fights For More Funding
Videos · disease awareness/support · Fundraising
Education resources
Gene Therapy: An Experimental Technique to Treat Genetic Diseases
Patient Education · Investigational Gene Therapy · Stem Cell Transfusion
Videos and visuals
How This Disease Changes the Shape of Your Cells - Amber M. Yates
Videos · Genetics · Mutations
Education resources
Implementation of an Educational Intervention to Optimize Self-Management and Transition Readiness in Young Adults With Sickle Cell Disease
Scientific Articles · Adolescent/Young Adult Transition · disease awareness/support · Educational Support