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Part of Sickle Cell Disease on Somebody To Talk To

Sickle Cell Disease sessions

Free, live conversations for people living with sickle cell disease, their families and the people caring for them.

13 upcoming137 past

Next session

Less Stress, Better Care: Prepare for Tests, Procedures and Results

· 6:00 PM – 7:00 PM ET · Colin Kloock, MD

Past sessions

November 2025

  1. 6:00 PM – 7:00 PM ET

    Food Insecurity + Anxiety + Sickle Cell with Dr. Tamika Harrison-Garcia

    Presenter
    • Portrait of Tamika Harrison-Garcia

      Tamika Harrison-Garcia

    Learn practical ways to handle the financial stress that comes with chronic illness. This discussion explores budgeting, insurance, disability benefits, and emotional coping strategies to help you feel more in control and less anxious about money and medical costs.
  2. 6:00 PM – 7:00 PM ET

    Dr. Simone Uwan MD: Author of A Doctor Living in a Patient's Body

    Presenter
    • Portrait of Simone Uwan

      Simone Uwan

    Join 2-time #1 bestselling author Dr. Simone Uwan, MD, as she shares insights from A Doctor Living in a Patient’s Body. Hear her inspiring journey from physician to patient and discover lessons on empathy, resilience, and redefining healing from the inside out. We will be giving away free copies of her book.

October 2025

  1. 6:00 PM – 7:00 PM ET

    My biggest challenge living with Sickle Cell Disease is...

    Presenters

    Presenter details are not available yet.

    Living with sickle cell disease brings daily challenges—physical, emotional, and practical. Join us to listen, share, and connect as patients open up about their biggest challenges and what helps them cope. Your story or insight could make a difference for someone else.
  2. 6:00 PM – 7:00 PM ET

    Money Matters: A Financial Toolkit for Sickle Cell Warriors

    Presenter
    • Portrait of Nene Kalu

      Nene Kalu

    Learn practical ways to manage your money and reduce stress around finances. This session offers simple tools to budget, plan for medical costs, and build confidence in your financial future while living with sickle cell disease.
  3. 6:00 PM – 6:50 PM ET

    Isolation & loneliness: How it impacts your health

    Presenter
    • Portrait of Patrise Holden

      Patrise Holden

    Feeling disconnected can affect both mind and body, but connection brings strength. Join us to explore how building supportive relationships can ease feelings of isolation, boost resilience, and create healthier, more joyful lives.
  4. 6:00 PM – 6:50 PM ET

    Genetic Counseling Demystified: Your Guide to Informed Health Choices

    Presenter
    • Portrait of Joanne Adelberg

      Joanne Adelberg

    Curious about genetic counseling? Learn what it is, why it matters, and how it can guide you through decisions about testing, treatment, and family health. Gain clarity and confidence in navigating your genetic journey. 
  5. 6:00 PM – 6:50 PM ET

    SCD Vocab #3: Medical Terms Every SCD Patient Should Know

    Presenters

    Presenter details are not available yet.

    Build your confidence in managing Sickle Cell Disease by mastering key medical terms every patient should know. This session will break down complex words into plain language, giving you the tools to understand your care and communicate with your doctors. 

September 2025

  1. 6:00 PM – 7:00 PM ET

    Show and Tell: Healing Through What We Hold Dear

    Presenter
    • Portrait of James Taylor

      James Taylor

    In Show and Tell: Healing Through What We Hold Dear, participants are invited to share 3 meaningful objects that represents strength, hope, or healing in their journey. This powerful session explores how personal items can carry deep emotional significance and foster connection, reflection, and resilience within our rare disease community.   
  2. 6:00 PM – 6:50 PM ET

    How new technologies like Ai are transforming Sickle Cell treatment and care

    Presenter
    • Portrait of David Gusick, Patient Advocate

      David Gusick, Patient Advocate

    AI is transforming the way amyloidosis is diagnosed and treated. This session explains how new tools improve early detection, guide doctors in treatment choices, and give patients clearer paths forward—bringing hope for better outcomes and quality of life.
  3. 6:00 PM – 6:50 PM ET

    Overcoming Loss, Grief, and Missed Life Experiences Due to Chronic Illness

    Presenter
    • Portrait of Tasja Gray

      Tasja Gray

    Chronic illness can bring deep grief—not just for what’s lost, but for what might have been. This session explores how to process loss, honor your emotions, and find healing after missed milestones, relationships, or dreams impacted by long-term illness.
  4. 6:00 PM – 6:50 PM ET

    The Power of Food in Chronic Illness Management

    Presenter
    • Portrait of Valancia Content

      Valancia Content

    Learn how targeted nutrition can strengthen the body, support recovery, and reduce complications associated with chronic illnesses. Participants will gain and share actionable strategies to make food a tool for wellness and disease management.

August 2025

  1. 6:00 PM – 6:50 PM ET

    Loving with Limits: Dating While Living with Sickle Cell

    Presenter
    • Portrait of Phil Okwo

      Phil Okwo

    Navigating love while managing SCD can be tough. This session explores how to talk about your condition with a partner, manage intimacy and trust, and build healthy romantic relationships despite chronic illness.