Acute Chest Syndrome: What every Sickle Cell Patient Needs to Know
Presenter
Dr. Lewis Thomas
Sickle Cell Disease sessions
Free, live conversations for people living with sickle cell disease, their families and the people caring for them.
13 upcoming137 past
Next session
Less Stress, Better Care: Prepare for Tests, Procedures and Results
· 6:00 PM – 7:00 PM ET · Colin Kloock, MD
Past sessions
March 2026
3:00 PM – 4:00 PM ET Acute Chest Syndrome is one of the most serious complications of sickle cell disease and can develop quickly, even when symptoms seem mild at first. In this session, we explain what causes ACS, the early warning signs patients should never ignore, and how rapid treatment can save lives. Learn what to watch for and how to act fast when it matters most.
February 2026
6:00 PM – 7:00 PM ET LYFGENIA Explained: A One-Time Gene Therapy for Sickle Cell Disease
Presenter
Sheri Reed
LYFGENIA is a one-time gene therapy for people with sickle cell disease. In this session, we explain how it works, who may qualify, the possible benefits, and the real risks in clear, simple language. No hype, no pressure. Just facts to help you decide. 3:00 PM – 4:00 PM ET Hydroxyurea Without the Fear: What SCD Patients Should Really Know
Presenter
Dr. Lewis Thomas
Hydroxyurea is one of the most studied treatments for sickle cell disease, yet many patients never try it. In this session, we’ll openly discuss benefits, risks, side effects, and common fears. No pressure, no judgment, just the information you need to decide if hydroxyurea is right for you.
January 2026
6:00 PM – 7:00 PM ET Lovin’ Through the Pain: A Relationship Survival Guide When Chronic Illness Is the Third Wheel
Presenter
Michael Hendricks
In this session, the creators of Lovin’ Through the Pain will introduce their 4-week relationship program (Starting in February) for couples living with chronic illness. You’ll learn why illness impacts connection, what their approach looks like, and what practical tools couples gain in the full series. 6:00 PM – 7:00 PM ET Real Talk: Triumphs & Trials of ’25, Hope and Direction for ’26
Presenter
Patrise Holden
This real talk session creates a raw, honest space to reflect on the triumphs and tribulations of 2025 while looking ahead to 2026 with clarity and intention. Through open conversation, interactive prompts, and frank discussion, attendees are invited to speak freely. Join us for shared dialogue about lessons learned, challenges faced, and the hope and direction we’re choosing next.
December 2025
6:00 PM – 7:00 PM ET Holding Their Memory: Sharing Stories, Objects, and the Truth of Loss
Presenter
Vanessa Finch
This session creates a safe, compassionate space to honor those we have lost. Participants are invited, but never required, to share a memory, a meaningful object, or a reflection. Come to listen, remember, and connect with others who understand loss in its many forms. 6:00 PM – 7:00 PM ET Game Night: A Celebration of Music, Culture, and Community
Presenter
Charles “Eclipse” Barnes, Jr.
Experience an interactive game night of rhythm and connection. With music centered challenges, pop culture trivia, and impromptu singing moments, this session celebrates resilience, hope, and the restorative power of shared community. 6:00 PM – 7:00 PM ET Your Genes, Your Future: How Sickle Cell Genetic Counseling Guides Smarter Decisions
Presenter
Samantha Cassisi
Curious about genetic counseling? Learn what it is, why it matters, and how it can guide you through decisions about testing, treatment, and family health. Gain clarity and confidence in navigating your genetic journey. 6:00 PM – 7:00 PM ET J Snow: Stand Up Comedian & SC Warrior tells some jokes and shares his story
Presenter
J Snow
Join us for a special session with J Snow, the stand up comedian whose humor has earned tens of millions of views online. He’ll kick things off with live comedy, then open up about his powerful journey growing up and living with sickle cell disease. J Snow blends humor, honesty, and unforgettable storytelling in a way that resonates deeply with patients, caregivers, and families. This is a rare chance to laugh, learn, and come together as a community.
November 2025
6:00 PM – 7:00 PM ET Thanksgiving Holiday - No Session
Presenters
Presenter details are not available yet.
There will be no session today. 6:00 PM – 7:00 PM ET Music Arts Therapy: Healing Through Rap, Rhythm, and Storytelling
Presenter
Charles “Eclipse” Barnes, Jr.
Music Arts Therapy: Healing Through Rap, Rhythm, and Storytelling is an interactive experience that invites participants to turn their emotions into art. Together, we’ll explore how rhythm and lyrics can help release pain, process trauma, and reclaim joy. Through call-and-response exercises, guided freestyle prompts, and group reflection, participants will experience and create music that speaks truth and fosters healing. 1:45 PM – 2:45 PM ET Howard University Hospital - Sickle Cell Disease & Stigma
Presenters
Lorraine Brown
David Gusick, Patient Advocate
Explore how stigma affects mental health in the sickle cell community. Join Dr. Marjorie Dejoie-Brewer, Rev. Dr. Lorraine Brown, David Gusick, and Oluwakemi Oguntimehin as they discuss therapy, AI tools, and access to emotional support worldwide.