Kidney Disease in Sickle Cell Patients: Early Detection and Prevention
Presenter
Dr. Lewis Thomas
Sickle Cell Disease sessions
Free, live conversations for people living with sickle cell disease, their families and the people caring for them.
13 upcoming137 past
Next session
Less Stress, Better Care: Prepare for Tests, Procedures and Results
· 6:00 PM – 7:00 PM ET · Colin Kloock, MD
Past sessions
May 2026
3:00 PM – 4:00 PM ET Join us for an informative session where we'll explore the crucial aspects of kidney health in individuals with sickle cell disease. Learn about the importance of early detection and the effective strategies to prevent kidney disease, enhancing your overall health and wellbeing. Our experts will provide clear guidance and answer your questions, helping you manage your health with confidence and support. This session is designed to empower you and your loved ones with knowledge and practical tips. 6:00 PM – 7:00 PM ET Getting Your Meds Right: Small Details That Can Make a Big Difference
Presenter
Stacey Goodman, MD
Medication issues are a common cause of avoidable setbacks. Learn a simple safety routine for refills, side effects, interactions, and supplements. We will create one clean med list, a refill calendar, and questions to ask before changes. Leave with a checklist that reduces risk and stress. Includes a safety checklist and a clean med list template. 3:00 PM – 4:00 PM ET Stroke Risk in Sickle Cell: What Every Patient Needs to Know
Presenter
Dr. Lewis Thomas
Stroke is a serious risk in sickle cell disease, but early awareness can save lives. Learn how strokes happen, warning signs to watch for, prevention strategies, and treatment options. Get clear, practical guidance to protect yourself or your loved one and know when to act fast.
April 2026
3:00 PM – 4:00 PM ET Tired All the Time? Managing Sleep and Energy with Sickle Cell
Presenter
Dr. Lewis Thomas
Fatigue is one of the most challenging parts of sickle cell disease. Learn why it happens and how to improve sleep, boost energy, and manage daily routines. Get practical, real-world strategies to feel more in control, reduce exhaustion, and make the most of your day. 3:00 PM – 4:00 PM ET Sickle Cell Retinopathy: Protect Your Vision Before It’s Too Late
Presenter
Dr. Lewis Thomas
Vision loss from sickle cell retinopathy can happen silently, often without early symptoms. Learn how to recognize warning signs, when to get screened, and what treatments can protect your eyesight. Get clear, practical guidance to help you take action early and preserve your vision. 3:00 PM – 4:00 PM ET Exercise and Sickle Cell: What Is Safe and What to Avoid
Presenter
Dr. Lewis Thomas
Staying active with sickle cell disease can improve strength, energy, and overall health, but it requires the right approach. This session breaks down which types of exercise are safe, how to pace yourself, and warning signs to watch for. Learn practical strategies to stay active while avoiding pain crises, dehydration, and overexertion. 6:00 PM – 7:00 PM ET Turning Challenges into Purpose
Presenter
Michele Wright
Rare and Remarkable: Turning Challenges into Purpose” is more than a theme—it’s a declaration. It speaks to the moments in our lives that tried to break us, but instead revealed us. It’s about recognizing that what makes us rare—our struggles, our setbacks, our scars—also gives us the power to become remarkable. Today, we explore how life’s greatest challenges are not detours, but divine direction—guiding us toward a purpose that is bigger, bolder, and uniquely our own. 3:00 PM – 4:00 PM ET Managing Pain Crises: Strategies That Actually Work
Presenter
Dr. Lewis Thomas
Pain crises can feel overwhelming, but the right strategies can reduce intensity and restore control. In this session, we explore practical, real world techniques for managing acute pain, preventing escalation, and communicating effectively with your care team so you can navigate crises with greater confidence. 6:00 PM – 7:00 PM ET More Than a Diagnosis: Our Rare Disease Story
Presenter
Michele Wright
Behind every diagnosis is a story of strength, resilience, and lived experience. In this session, we will share our real-world journeys with sickle cell disease, offering insight, lessons learned, and hope. Join us to connect, learn, and feel less alone in your path. 3:00 PM – 4:00 PM ET Pulmonary Hypertension in Sickle Cell: A Hidden but Serious Risk
Presenter
Dr. Lewis Thomas
Pulmonary hypertension is a serious but often overlooked complication of sickle cell disease that can impact breathing, energy, and long-term health. Learn the warning signs, how it’s diagnosed, and what you can do to manage your risk and advocate for the right care.
March 2026
3:00 PM – 4:00 PM ET Avascular Necrosis in Sickle Cell Disease: Early Warning Signs Every Patient Should Know
Presenter
Dr. Lewis Thomas
Kidney problems can develop quietly in people living with sickle cell disease. Nephrotic syndrome is one of the most serious complications and early symptoms are often missed. In this session, learn the warning signs, how doctors detect kidney damage, and what steps patients can take early to protect kidney function and long-term health. 6:00 PM – 7:00 PM ET Hidden in the Family Tree: What the Sickle Cell Community Should Know About Hereditary Amyloidosis
Presenter
Art Still
NFL champion Art Still shares a deeply personal story connecting sickle cell disease and hereditary amyloidosis, a serious but treatable condition that often affects Black families. Learn the warning signs, why family history matters, and how early awareness can save lives. An important conversation for SCD patients and caregivers.