Gallstones & Sickle Cell Disease: Symptoms, Treatment & When to Seek Care
Presenter
Dr. Lewis Thomas
Sickle Cell Disease sessions
Free, live conversations for people living with sickle cell disease, their families and the people caring for them.
13 upcoming137 past
Next session
Less Stress, Better Care: Prepare for Tests, Procedures and Results
· 6:00 PM – 7:00 PM ET · Colin Kloock, MD
Past sessions
June 2026
3:00 PM – 4:00 PM ET Join us as we explore the common yet often overlooked connection between gallstones and sickle cell disease (SCD). In this session, we'll discuss why individuals with SCD are at higher risk for gallstones, how to recognize symptoms, and effective management strategies. Our experts will provide insights into preventive care and treatment options to help you or your loved one manage these conditions effectively. We aim to empower you with knowledge and support, making sure you have the tools to maintain the best possible health. 6:00 PM – 7:00 PM ET Being Honest about your Symptoms without feeling like your Complaining
Presenter
Martha Hodges, DNP, APRN, FNP-C
University of Chicago
Know what to do when symptoms change. Learn when to message, call, go to urgent care, or go to the ER, plus what to say so you get the right care fast. We will build an escalation ladder and an ER handoff card. Leave with clarity and confidence for stressful moments. Includes an ER summary card and a clear escalation ladder. 6:00 PM – 7:00 PM ET The Life You Didn't Plan For: Building a Future You Can Still Get Excited About
Presenter
LaConyer Davis, LPC, EdD
Join us to explore how to nurture relationships and build a supportive community, despite the challenges of a rare disease. Learn strategies to maintain connections and foster new ones, ensuring you have the emotional support to thrive and find joy in life's journey. 3:00 PM – 4:00 PM ET Understanding Sickle Cell Leg Ulcers: Prevention, Treatment & Daily Management
Presenter
Dr. Lewis Thomas
Join us to learn how good oral hygiene can impact overall health, especially for those living with Sickle Cell Disease (SCD). In this session, we'll explore practical dental care tips tailored specifically for SCD patients to help prevent infections and manage pain. Our expert will guide you through the best practices for daily dental care and discuss how to work effectively with your healthcare providers to support your dental and overall health. This is a great opportunity to ask questions and gain valuable insights to keep your smile bright and your body healthier. 6:00 PM – 7:00 PM ET SC Crisis Management: What Works for You?
Presenter
Krystal Griffin, MS CMHC
Join us to explore effective strategies for managing sickle cell crises. Share your experiences and learn from others about what treatments and coping mechanisms have worked for them. Gain insights and support to help you navigate these challenges more confidently. 6:00 PM – 7:00 PM ET Navigating Stress: Tips for a Peaceful Mind
Presenter
KaShawn Kirton, DSW, LSW
Join us to learn effective strategies for managing stress with sickle cell disease. Discover relaxation techniques, coping mechanisms, and ways to maintain a peaceful mind in our supportive, understanding environment. 3:00 PM – 4:00 PM ET When to Go to the Emergency Room
Presenter
Dr. Lewis Thomas
Join us for a crucial session on recognizing the signs that require emergency care for someone with Sickle Cell Disease (SCD). Learn to distinguish between normal symptoms and serious complications that need immediate attention, such as severe pain, fever, or signs of stroke. This guidance will help you make timely decisions about when to seek hospital care, providing peace of mind and empowering you with the knowledge to act swiftly and effectively in critical situations. 6:00 PM – 7:00 PM ET Your Medical Notebook: Labs, Meds, Questions, Contacts & Care Info
Presenter
Tracey Silverstein, RN
Endeavor Health
Top patients close the loop. Learn a simple system to keep labs, referrals, imaging, and follow ups from falling through the cracks. We will build a tracker, reminders, and a weekly review habit. Leave with a follow through workflow that saves time and prevents last minute chaos. Includes a weekly 10 minute review that keeps you on track.
May 2026
6:00 PM – 7:00 PM ET The Emotional Weight of Chronic Illness: Coping Without Losing Yourself
Presenter
Krystal Griffin, MS CMHC
Living with chronic illness can feel emotionally exhausting and isolating. In this supportive session, Krystal Griffin, MS CMHC, will share practical strategies for managing stress, protecting your identity, and coping with the emotional ups and downs of daily life while building resilience and connection. 3:00 PM – 4:00 PM ET Hydroxyurea and Your Fertility Journey: What You Need to Know
Presenter
Dr. Lewis Thomas
Join us for an informative session where we'll explore how hydroxyurea, a common treatment for sickle cell disease, can impact fertility. Our experts will provide insights and answer your questions, helping you make informed decisions about family planning. Whether you're currently using hydroxyurea or considering it as a treatment option, this session will offer valuable guidance and support as you navigate your fertility journey. 6:00 PM – 7:00 PM ET Advocacy 101: Finding Your Voice & Speaking Up with Confidence
Presenter
Thomas Bartlett, Patient Advocate
Bring someone with you and make it a superpower. Learn how to choose the right person, assign roles, and use them to capture details and advocate calmly. We will create a simple briefing and debrief routine. Leave with a plan that reduces stress and improves follow through. Includes a simple role sheet so your advocate knows what to do. 4:00 PM – 5:00 PM ET Bone Marrow Transplants for Sickle Cell: Risks, Benefits & Getting Started
Presenter
Adetola A. Kassim, MD, MS, FACP
Vanderbilt Health
Join us for an enlightening session where we will explore the latest clinical trials for sickle cell disease (SCD). Learn about new potential treatments, how these studies are conducted, and how you might be able to participate. This is a great opportunity to ask questions, understand the research process, and find out about the newest advancements in SCD care. Our goal is to empower you with knowledge and hope as we look forward to breakthroughs together.