Clinical Trials 101: Everything You Need to Know To Get Started
Presenter
Kellie Kirksey
Sickle Cell Disease sessions
Free, live conversations for people living with sickle cell disease, their families and the people caring for them.
13 upcoming137 past
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Less Stress, Better Care: Prepare for Tests, Procedures and Results
· 6:00 PM – 7:00 PM ET · Colin Kloock, MD
Past sessions
October 2023
6:00 PM – 6:30 PM ET You've got questions? We've got answers. In this session, we will provide a beginner's guide to clinical trials. We will walk you through the process of figuring out which clinical trials are accepting patients, and how to decide which one might be right for you. We will also answer your questions like: How much does it cost? Can I get paid for being in a trial? Will being in one trial shut me out of another trial? Is it dangerous? What happens if I am in the placebo group? By the end of this session, you will have a lot more knowledge about how clinical trials work. 6:00 PM – 6:30 PM ET Decision Making When You Don't Have All the Facts
Presenter
Kellie Kirksey
Everyday we face conflicts that impact our emotional wellbeing. Some conflicts are with a loved one, like a partner or child, some are internal conflicts within ourselves. Dr. Heitler will share her insights and approaches to overcoming obstacles so that we can move forward in the healthiest way possible 6:00 PM – 6:30 PM ET Learning the Language of Sickle Cell Disease
Presenter
William Gibbs
Whether you are going to the auto mechanic or a doctor's appointment, every specialty has its own unique set of words that are necessary in order to communicate issues and solutions. For DMD it is words like "Hemoglobin", "Vaso-Occlusion" and "Ribosomes". In this series we will address important words and concepts that every Sickle Cell Patient and Caregiver should know so that they can better understand and communicate with their doctors. 6:00 PM – 6:30 PM ET How to Manage Pain During a Sickle Cell Crisis using PMR
Presenter
Kellie Kirksey
A sickle cell crisis can be overwhelming both physically and emotionally. In this session you will learn a technique called "Progressive Muscle Relaxation". In a clinical study, Progressive Muscle Relaxation has been shown to be an effective tool in managing pain during a sickle cell crisis.
September 2023
6:00 PM – 6:30 PM ET How to Be a Better Sickle Cell Patient
Presenter
William Gibbs
It is easy to rely on your doctors to take care of your health, but the reality is nobody is going to take more interest in your health than you. In this session we will discuss how you can work doctors to help maximize your treatment. We will discuss "patient skills" such as taking notes, writing down questions in advance for your doctor. Taking notes in between visits and taking your medications as prescribed. Small differences in your behavior can make a big impact on your overall health and effectiveness of your prescribed treatments. We will share and discuss various things other patients do to get the most out of their doctor visits.