Suffering = Pain x Resistance
Presenter
Tanmeet Sethi MD
Sickle Cell Disease sessions
Free, live conversations for people living with sickle cell disease, their families and the people caring for them.
13 upcoming137 past
Next session
Less Stress, Better Care: Prepare for Tests, Procedures and Results
· 6:00 PM – 7:00 PM ET · Colin Kloock, MD
Past sessions
January 2025
6:00 PM – 6:45 PM ET Join our insightful Zoom session, "Suffering = Pain x Resistance," to explore how resistance to pain can intensify suffering. We’ll discuss strategies for reducing suffering by understanding the relationship between pain and emotional resistance. Learn how acceptance and mindful practices can transform your experience with pain, helping you manage discomfort and improve overall well-being. 6:00 PM – 6:45 PM ET Everything you need to know about "Medical Goals of Care"
Presenter
Stacey Goodman, MD
Join our Zoom session, "What are "Medical Goals of Care" & what you need to know about them" where we’ll explore how to define and communicate your health priorities. Learn how to make informed decisions about treatments, discuss goals with your healthcare team, and plan for future care. This session will equip you with the knowledge to take control of your medical journey with clarity and confidence. 6:00 PM – 6:45 PM ET Comorbidities: SCD and Asthma
Presenter
Naresh Bumma
Join our Zoom session, "Comorbidities: Diabetes and Asthma" to explore the impact of managing both conditions. Experts will discuss how diabetes and Asthma interact, share tips for symptom management, and provide strategies to improve your quality of life. Don’t miss this chance to gain valuable insights on balancing the care for these two chronic conditions.
December 2024
6:00 PM – 6:45 PM ET Sickle Cell Disease Vocab Part II
Presenter
Gina Glass
Join our educational Zoom session on "Sickle Cell Disease Introductory Vocabulary Words," designed to enhance your understanding of essential terms related to sickle cell disease. This session will cover key vocabulary, helping patients, families, and caregivers navigate conversations with healthcare providers confidently. Whether you're newly diagnosed or seeking to deepen your knowledge, this interactive discussion will empower you with the language of sickle cell disease!
November 2024
6:00 PM – 6:45 PM ET The power of daily rituals
Presenter
Dan Lier
Join our Zoom session on "The Power of Daily Rituals" and discover how simple, mindful routines can positively impact your health and well-being. Experts will share insights on reducing stress, managing symptoms, and building empowering habits. Whether you're newly diagnosed or experienced, this session offers practical tips to improve daily life. Register today and take the first step towards healthier living! 6:00 PM – 6:45 PM ET Getting your adult children to call more often
Presenter
Dan Lier
Join our Zoom session, "Getting Your Adult Children to Call More Often," where we'll discuss practical strategies to improve communication and strengthen your relationship with your grown children. Learn tips for fostering connection without pressure and creating more meaningful, frequent interactions. Don't miss this chance to enhance family bonds and open the lines of communication!
October 2024
6:00 PM – 6:45 PM ET Accessing your medical records with MyChart
Presenter
Laura Tamblyn
Join our Zoom session on "MyChart Patient Portal Basic Training" to learn how to easily view, manage, and track your health information online. Experts will guide you through setting up and using MyChart for appointments, test results, and more. Whether you're new to MyChart or looking to optimize its use, this session offers practical tips for taking control of your health records. 6:00 PM – 6:45 PM ET Breaking negative thought loops
Presenter
Chad Brandt
Obsessing is normal! We get a negative thought into our head, and that leads to another negative thought which leads to another. Once we follow our line of thinking to its natural conclusion…we start all over again! This is the foundation for every type of anxiety. It keeps us up at night, breaks our concentration and can result in extended bouts of heightened anxiety. In this sessions we will discuss how understandingnthe feedback loop can teach us how to break negative thought loops, and help deliver what we are all looking for: A little more peace of mind. 6:00 PM – 6:45 PM ET SCD Patient Skills - Communicating with your doctor
Presenter
Gina Glass
Your relationship with your doctors and your care team may be one of your most important relationships. Like any successful relationship, effective communications is critical for both short and long term success. In this session we will be discussing how effective communications can improve both morbidity (symptoms) and mortality (outcome).
January 2024
6:00 PM – 6:45 PM ET Comorbidities: SCD and Diabetes
Presenter
Naresh Bumma
Join our Zoom session, "Comorbidities: Diabetes and Sickle Cell Disease," to explore the impact of managing both conditions. Experts will discuss how diabetes and sickle cell disease interact, share tips for symptom management, and provide strategies to improve your quality of life. Don’t miss this chance to gain valuable insights on balancing the care for these two chronic conditions.
November 2023
6:00 PM – 6:30 PM ET Seeking Help is a Strength Not a Weakness
Presenter
Kellie Kirksey
If you are suffering emotional. There is no shame in asking for help from others. In fact, asking for help is the best thing you want to feel better. Whether it is a trusted friend or a professional, talking out your struggles with others, especially those facing similar life challenges is both therapeutic and rewarding. In this session, we will discuss the many support options that exist and how you can go about accessing those resources. 6:00 PM – 6:30 PM ET Advocacy 101: Learning to Speak Up for Yourself and Others
Presenter
Kellie Kirksey
School Boards, Insurance Companies, Legislators, Regulators and many others will tell you they can’t help you, but experience shows that if you fight for what’s right & what you need, more often than not you will get more than you expected. Terri will share stories and tactics to get more for you and your child.