DISCLAIMER
The information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.compose your message
message sent
email sent successfully
Trusted Resources: News & Events
Latest announcements and gatherings
YARR Leadership Academy Application
YARR Leadership Academy is providing a series of on-line courses offered to a select group of young adults in the rare disease community (ages 18-29). Academy students will learn about the roles and opportunities for patient representation in policy making, drug development and the regulatory process and the steps it takes to get there.
Timeline/Dates:
Application open Jan 1st-Feb 15th, 2021.
Deadline to apply on Feb. 15th, 2021 @5pm ET.
All applicants will be notified by March 1st, 2021.
This event has ended.
Related Content
-
news & eventsJordin Sparks Wants You to Know Your Sickle Cell StatusThe phrase “know your status” is syn...
-
education & researchSickle Cell and School: A Guide to School Policy and Best PracticesSickle cell disease (SCD) is a collectiv...
-
videos & visualsShine the Light on Sickle Cell – Webinarhttps://www.youtube.com/watch?v=IIG0UUO5...
-
news & events5th Annual World Sickle Cell Day 24-Hour Sickle Cell-a-ThonCayenne Wellness Center and Children's F...
-
news & eventsFoundation for Women and Girls ConferenceJoin Foundation for Women & Girls wi...
-
videos & visualsA Patient’s Journey With Sickle Cell Diseasehttps://www.youtube.com/watch?v=h8ZetdyY...
-
news & eventsE.S.C.A.P.E. RetreatE.S.C.A.P.E. (Empowering Sickle Cell Adu...
send a message
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.