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Latest announcements and gatherings
YARR Leadership Academy is providing a series of on-line courses offered to a select group of young adults in the rare disease community (ages 18-29). Academy students will learn about the roles and opportunities for patient representation in policy making, drug development and the regulatory process and the steps it takes to get there.
Application open Jan 1st-Feb 15th, 2021.
Deadline to apply on Feb. 15th, 2021 @5pm ET.
All applicants will be notified by March 1st, 2021.
This event has ended.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.