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Trusted Resources: News & Events
Latest announcements and gatherings
Sickle Cell Disease Camp – JWCF at RoundUp River Ranch
A free week-long camp for children ages 7-17 years old who are diagnosed with cancer and sickle cell disease. To attend Summer Camp, campers must be fully vaccinated for COVID-19.
July 24 – 28, 2023
JWCF at RoundUp River Ranch
8333 Colorado River RD
Gypsum, Colorado, United States
news & eventsHemoglobinopathy Counselor Training Course – VIRTUALUPDATE! 2020 Hemoglobinopathy Counselor ...
education & researchRegaining Control: Anxiety in Sickle Cell DiseaseB. was a 15-year-old adolescent girl liv...
people & placesUConn Health / New England Sickle Cell InstituteThe New England Sickle Cell Institute at...
Community CenterLiving With Sickle Cell: ‘I Don’t Know What It Means to Be Without Pain’Once a month, she undergoes a grueling p...
education & researchPatient-reported experience measure in sickle cell diseaseObjectives: To develop patient-reported...
people & placesLifespan Comprehensive Sickle Cell CenterThe Lifespan Comprehensive Sickle Cell C...
people & placesJulie Makani, FRCP, PhDDr. Julie Makani is an Associate Profess...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.