DISCLAIMERThe information and materials accessed through or made available for use on any of our Sites, including, any information about diseases, conditions, treatments, or medicines, are for informational purposes only. The Content is not intended to be and is not a substitute for professional medical advice, diagnosis, or treatment, and your participation on our Sites does not create a healthcare professional-patient relationship. You should consult a doctor or other qualified health care professional regarding any questions you have about your health or before making any decisions related to your health or wellness. Call your doctor or 911 immediately if you think you may have a medical emergency.
Trusted Resources: News & Events
Latest announcements and gatherings
12–1 p.m. EST
Zoom online training
The P.O.W.E.R ECHO Project Community Health Worker Training is designed to assist community health workers with resources and education, in order to strengthen their efforts in providing support services for sickle cell disease (SCD) patients. P.O.W.E.R ECHO Project uses the ECHO telecommunication model to reach community health workers by offering online training services on emerging and current topics in sickle cell disease.
The P.O.W.E.R. training for Community Health Workers (CHWs) is designed to provide CHWs working in the SCD community with further resources and educational tools to strengthen their efforts in providing supportive services for sickle cell disease patients and their families.
The P.O.W.E.R ECHO Project uses the ECHO telecommunication model to bridge CHWs from various regions in professional development sessions focused on current and emerging sickle cell disease topics through training and case study discussions.
July 6, 2023, | 12:00 – 1:00 PM EST
Topic: Mental Wellness & Sickle Cell Disease
Presented by Ronisha Edwards, LSW, patient advocate
Click here to register
news & eventsHemoglobinopathy Counselor Training Course – VIRTUALUPDATE! 2020 Hemoglobinopathy Counselor ...
news & eventsUH Researcher Reports the Way Sickle Cells Form May Be Key to Stopping ThemUniversity of Houston associate professo...
videos & visualsSCDAA Gene Therapy Town Hall – Webinarhttps://www.youtube.com/watch?v=J77Gq9yI...
videos & visualsHospital Infographichttps://s-media-cache-ak0.pinimg.com/564...
education & researchSickle Cell Trait, Rhabdomyolysis, and Mortality among U.S. Army SoldiersBACKGROUND: Studies have suggested that...
news & eventsCOVID-19 Health Alert for Patients and Caregivers – SCDAAMay 27, 2020 – COVID-19, the coronav...
videos & visualsSickle Options Video Libraryhttp://sickleoptions.org/en_US/video-lib...
send a message
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.