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Trusted Resources: News & Events
Latest announcements and gatherings
Meeting 5: Addressing Sickle Cell Disease: A Strategic Plan and Blueprint for Action
The Committee on Addressing Sickle Cell Disease: A Strategic Blueprint and Plan for Action will hold an open session for the public on Wednesday, September 11, 2019. This open session will include a panel of industry speakers who are currently developing therapeutic and curative products for sickle cell disease. The purpose of this session is to have manufacturers share their perspectives with the committee about the range of products in development, the regulatory process, and considerations for ensuring widespread access to pipeline products. More information about this session, including agenda and speakers will be forthcoming.
news & eventsStatement on NHLBI Decision to Pause the Pilot and Feasibility Study of Hematopoietic Stem Cell Gene Transfer for Si...bluebird bio, Inc. suspended its clinica...
news & eventsOrphan Drug Designation Granted for CSL Behring’s Investigational Plasma-Derived Hemopexin Therapy for Sickle ...Global biotherapeutics leader CSL Behrin...
news & eventsHealthy red blood cells owe their shape to muscle-like structuresRed blood cells are on a wild ride. As t...
videos & visualsHow to Talk to Your Child About Hydroxyureahttps://www.youtube.com/watch?v=_apTt2j0...
people & placesPiedmont Health Services and Sickle Cell AgencyPiedmont Health Services and Sickle Cell...
education & researchAcute chest syndrome among hospitalized children with vaso-occlusive crisis: A nationwide study in the United StatesBackground: Acute chest syndrome (ACS) r...
news & eventsGene-Therapy Company Crispr Drops as FDA Puts Trial on HoldCrispr Therapeutics AG plunged after the...
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.