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Trusted Resources: News & Events
Latest announcements and gatherings
Rare family, we are back in person! The 2022 Living Rare, Living Stronger Patient and Family Forum will bring the rare disease community together in Cleveland, Ohio for a day of learning, networking, discussion, and the Rare Impact Awards, presented live at the incredible Rock and Roll Hall of Fame in downtown Cleveland!
The health, safety and comfort of attendees and the rare community are NORD’s number one priority, so please review our event guidelines and check back often for more information and updates from the NORD team.
June 26, 2022
InterContinental Cleveland Conference Center
9801 Carnegie Avenue
Cleveland, Ohio, United States
This event has ended.
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This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.