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Living Rare, Living Stronger – NORD Patient and Family Forum


May 14, 2020–May 16, 2020

Join us for a rare and rockin’ celebration in Cleveland, Ohio! NORD invites patients, families, caregivers, medical professionals and students to connect with the rare community.

The Living Rare, Living Stronger agenda includes sessions in which patients and their families can gain insight and practical tools for living their best lives with rare diseases, with four tracks provided for newly diagnosed patients, long-term patients, caregivers and physicians/medical students. Attendees can customize their experience by either choosing one track to follow throughout the forum or by building their own schedule based on sessions of interest.

As a part of the 2020 Living Rare Forum, NORD is giving all attendees a backstage pass to the iconic Rock and Roll Hall of Fame for the annual Rare Impact Awards. During the ceremony, NORD honors individuals and organizations that have truly gone above and beyond to drive progress and foster relationships for rare disease patients and their communities. This will be a show you won’t want to miss!

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