OneSCDvoice archive
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460 pages from 2019
Education resources
Diving into the genetics of Sickle cell disease
Patient Education · African-American/African · Genetics
News and meetings
Dr. Wayne A. I. Frederick launches 'Run to Cure Sickle Cell' campaign
Spotlight
News and meetings
Safety and early hints of benefit seen in phase 1b trial of PF-04447943
Clinical Trials and Research
News and meetings
These patients had sickle-cell disease. Experimental therapies might have cured them
Clinical Trials and Research
Education resources
Assessment of executive functions in preschool children with sickle cell anemia
Scientific Articles · Neuropsychological/Cognitive Impairment
Education resources
Children and adolescents with sickle cell disease have worse cold and mechanical hypersensitivity during acute painful events
Scientific Articles · Temperature Changes · Vaso-occlusive Crisis/Pain Crisis
Education resources
Improving disease knowledge in 6- to 10-year-olds with sickle cell disease: A quasi-experimental study
Scientific Articles · Children · Knowledge/Health literacy
Education resources
L-Glutamine for sickle cell anemia: More questions than answers
Scientific Articles · L-Glutamine/Endari
Education resources
Mobile health intervention for youth with sickle cell disease: Impact on adherence, disease knowledge, and quality of life
Scientific Articles · QUALITY OF LIFE · Adherence · Knowledge/Health literacy · Living with SCD/Quality of Life
Education resources
Modifying factors of the health belief model associated with missed clinic appointments among individuals with sickle cell disease
Scientific Articles · adherence to appointments
Education resources
Pneumococcal vaccination coverage among children with sickle cell anemia, sickle cell trait, and normal hemoglobin
Scientific Articles · Pneumococcal Infection · Pneumococcal vaccine/PCV7/PPSV23
Education resources
Predictive factors of daily opioid use and quality of life in adults with sickle cell disease
Scientific Articles · QUALITY OF LIFE · Living with SCD/Quality of Life · Opioids · Pain