Trusted Resources: Evidence & Education
Scientific literature and patient education texts
Parents Handbook for Sickle Cell Disease
source: State of California Department of Health Services, Genetic Disease Branch
year: 2015
summary/abstract:This is a parents handbook for sickle cell disease from The Virginia Sickle Cell Awareness Program. It contains:
-Parent Handbook Part I
-Parent Handbook Part II
Part I is relevant for parents with kids from birth to six years of age, and Part II is relevant for parents with kids of age six to eighteen years.
This handbook was developed in response to requests from parents of children with sickle disease for more detailed information that they could refer back to as needed. The parents’ role in early identification of infection and other problems is difficult yet so critical to the health of their child particularly during the first few years of life.
read moreRelated Content
-
Crux of the matter with Elsie: Sexual Disposition of Sickle Cell WarriorsWhether we like it or not, sex is import...
-
You’d never know this 2-year-old has sickle cell anemiaWhen you meet 2-year-old Evelyn Islam, t...
-
How Sickle Cell Affects the Bodyhttps://www.youtube.com/watch?v=RewyXWKJ...
-
Family functioning, medical self-management, and health outcomes among school-aged children with sickle cell disease...BACKGROUND: Informed by the Pediatric S...
-
Camp New Hope 2022Camp New Hope is a seven-day; six-night ...
-
The challenges of being a caregiver to my cousin with sickle cellWhen I embarked on this journey as a c...
-
Individuals with Disabilities Education Act (IDEA)The U.S. Department of Education’s Ind...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.