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(SC)2: South Carolina Sickle Cell Disease Access to Care Pilot Program

Medical University of South Carolina
171 Ashley Avenue
Charleston, South Carolina, United States
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(SC)2 is a sickle cell disease network in South Carolina led by Dr. Julie Kanter, generously funded by The Duke Endowment. (SC)2 is designed to use collective impact methodology to harness the current efforts of the sickle cell disease (SCD) stakeholders to create disease-specific medical homes for individuals living with SCD in South Carolina. This group of stakeholders is comprised of physicians, community-based organizations, patients, providers, caregivers, and members of the Department of Health and Environmental Control. Coordinating our labors and using common measures of success, we are able to align our goals. The goals are to enhance access to care for affected individuals, educate local providers to develop knowledge and self-efficacy in treating and managing SCD, and improve cost of care through increased quality of care.

Through enhanced specialized care and care coordination, it is expected that affected persons will have improved individualized treatment, enhanced quality of life, decreased acute care utilization and overall improved disease control. Secondary goals include increasing local physician knowledge and self-efficacy in managing individuals with SCD through bi-monthly tele-mentoring conferences (based on the ECHO project) and improved coordinated efforts to care for the affected population.

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