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With oneSCDvoice, People Living with Sickle Cell Disease Have an Online Community to Call their Own


By Freddie Allen (Editor-In-Chief, NNPA Newswire) People living with sickle cell disease (SCD) fight a lifelong, uphill battle against severe pain, isolation and a medical establishment often ill-equipped to offer compassionate, informed care.

That’s why Pfizer Inc., partnered with the Sickle Cell Disease Association of America (SCDAA) to create, oneSCDvoice, a digital platform that provides access to resources designed to increase knowledge, emotional support, and help empower people living with SCD, according to a press release about the new platform.

SCDAA, is a national organization that has supported the needs of the SCD community since 1971 with 50-plus chapters that provide critical services to the local SCD community, the press release stated.

The Centers for Disease Control and Prevention says that sickle cell disease occurs in roughly 1 out of every 365 Black or African American births and about 1 in 13 Black or African American babies is born with sickle cell trait (SCT).

 

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