the heart of oneSCDvoice, where you can share your thoughts, ask questions and discuss the latest SCD news and research. post photos, videos and links. find support from a friendly, knowledgeable community!

rareTeams learn more
Resources for you
Global Alliance of Sickle Cell Disease Organisations
Pediatric to Adult Transition in Sickle Cell Disease: Survey Results from Young Adult Patients
Type 2 Diabetes in Adults With Sickle Cell Disease: Can we Dive Deeper? Response to Skinner et al
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Where Do I Find Information on Current Clinical Trials?
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The Sickle Cell Disease Association of America's (SCDAA) National Patient Powered Registry

This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.
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4 exciting and helpful features - all in one place
your curage feed on oneSCDvoice.com
encourage media feed - SCD community ignites!
  • have an instant community where everyone is friends - no need to send requests
  • create your SCDteams of closest friends, family members, caregivers and healthcare providers connect with them during crisis
  • SCD-Related info panels - learn more because oneSCDvoice does the research for you!
  • use the sentiment palette to clickEmoteTM by sending and receiving hugs, thanks, prayers and cares - no more awkward "like" buttons
information on SCD clinical trials
clinical trials & features designed for easier access
  • find opportunities to participate in research, and advance the pursuit of treatments and cures
  • easily locate clinical trial centers who need you and are near your home
  • get a clinical trial report that matches you with clinical trials
  • become or find a real-person mentor to support and guide each other in clinical trials
  • learn more about clinical trials in our education center of videos and step-by-step guides
curated news about SCD
trustworthy disease information curated by experts
  • scientific papers written by the researchers and doctors studying treatments and cures
  • bios and profiles of expert doctors, counselors, advocates and other leaders
  • the rest of the internet - we found super cool stuff, including movies, fundraisers, patient assistance programs and more
  • the latest news about Sickle Cell Disease
  • patient videos, slidedecks and infographics
  • constantly updated 24/7
SCD mobile app
coming soon!
our positive community, right in your pocket

SCDWallet

  • medical history
  • physician contact information
  • personal intro video with your friends, family and medical team

SCDCrisis

  • out of town? need to find an ER?
  • request medical assistance and geolocate centers to get you help fast

SCDChat

  • stay in touch with your SCDTeam of friends, family and medical team during your crisis.
  • send photos, chat and pass the time with positive support