the heart of oneSCDvoice, where you can share your thoughts, ask questions and discuss the latest SCD news and research. post photos, videos and links. find support from a friendly, knowledgeable community!

rareTeams learn more

Do you think others outside of your close friends and family understand the challenges you face in your SCD journey?
4 exciting and helpful features - all in one place
your curage feed on
encourage media feed - SCD community ignites!
  • have an instant community where everyone is friends - no need to send requests
  • create your SCDteams of closest friends, family members, caregivers and healthcare providers connect with them during crisis
  • SCD-Related info panels - learn more because oneSCDvoice does the research for you!
  • use the sentiment palette to clickEmoteTM by sending and receiving hugs, thanks, prayers and cares - no more awkward "like" buttons
information on SCD clinical trials
clinical trials & features designed for easier access
  • find opportunities to participate in research, and advance the pursuit of treatments and cures
  • easily locate clinical trial centers who need you and are near your home
  • get a clinical trial report that matches you with clinical trials
  • become or find a real-person mentor to support and guide each other in clinical trials
  • learn more about clinical trials in our education center of videos and step-by-step guides
curated news about SCD
trustworthy disease information curated by experts
  • scientific papers written by the researchers and doctors studying treatments and cures
  • bios and profiles of expert doctors, counselors, advocates and other leaders
  • the rest of the internet - we found super cool stuff, including movies, fundraisers, patient assistance programs and more
  • the latest news about Sickle Cell Disease
  • patient videos, slidedecks and infographics
  • constantly updated 24/7
SCD mobile app
coming soon!
our positive community, right in your pocket


  • medical history
  • physician contact information
  • personal intro video with your friends, family and medical team


  • out of town? need to find an ER?
  • request medical assistance and geolocate centers to get you help fast


  • stay in touch with your SCDTeam of friends, family and medical team during your crisis.
  • send photos, chat and pass the time with positive support