Traumatic story of an SCD patient: Life was tough as I was branded evil child | oneSCDvoice
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Traumatic story of an SCD patient: Life was tough as I was branded evil child


 

“I am a warrior; I am a sickle cell warrior.” These were the words of Mrs Fasasi Olushola who has been living with Sickle Cell Disease, SCD, for over 31 years now.

Fasasi like every other Nigeria living with sickle cell suffered humiliation, discrimination, and all sorts just because she is living with a disease that is not a fault of hers. She was given different names – Ogbanje, witch, evil child and Alagbanomo – among others. No one seemed to understand her plight, apart from her mother, due to ignorance of the fact that her condition was an inherited disorder that was no fault of hers.

Growing up like every other child in her neighborhood was a challenge. Many of her mates refused to associate with her. They made a mockery of her. Even in school, where she expected to have an understanding of teachers, the situation was not different. Teachers and fellow students kept their distance from her.

Like Fasasi, many people living with SCD face difficulties in the society instead of being protected.