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reference materials

Transition of Patients with Sickle Cell Disease from Pediatric Care to Adult Care: Implications for Positive Disease Self-management in Transition

key information

source: Wright Institute

year: 2006

authors: Dena Marie Scott


The role of self-efficacy, psychological distress and health care utilization within the transition process was also examined. Findings indicated that youth with SCD obtained higher self-efficacy compared with adults and adults were somewhat more depressed. Consistently, participants reporting more emotional distress were more likely to report more challenges remaining positive about their illness, and also reported facing more overall symptoms. However, the relation between self-efficacy and health care utilization was not found to be strong nor was the relation between self-efficacy and self-rated preparation for transition. Suggestions for future research include larger, multi-site, longitudinal studies to identify more specific self-management skills that facilitate the transition process. Multi-system, empirically based transition programs fostering positive disease management should be developed, implemented and evaluated. The transition to adulthood represents a critical turning point in the life course. Strategies to insure that youth with SCD have optimal preparation and support as they move into adult life are equally critical.

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