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patient education

Sickle cell- disease specific education for parents and kids

key information

source: Coordinated Health Care for Complex Kids (CHECK)


If you have sickle cell disease, you could feel overwhelmed by all of things you need to know. Whether you have managed sickle cell on your own for years or you are just starting to manage it on your own, this program offers lots of information for you to learn. Some of the topics you will learn about are: how sickle cell affects your body, the types of medication for sickle, and how to stay healthy. You will even find videos about other people who deal with sickle cell too!

Being a parent with a child who has sickle cell can be overwhelming. There is a lot of information to learn. Whether you’ve managed your child’s disease for a while or your child just got diagnosed, this program will offer you lots of information to support your learning. Some of the topics included are: tips for keeping your child healthy, taking care of yourself, and knowing where to find help for managing your child’s disease and navigating the healthcare system. You will even find videos about other parents who have children with sickle cell.

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